|
|
smile
Junior Supporter
Posts: 15
Joined: Jan 2005
|
1/9/05 1:05 PM
|
|
Your condition sounds pretty good, and there is definitely a lot of help out there for you. Just keep going!
My relative is a female, 50 yrs old, and has MS for approx. 15 yrs. now. Her condition is walker/wheelchair, and has been stable for the past 3 yrs now. She's on weekly Avonex injections, which is preventing her MS from getting worst. Over the last # of yrs she has tried many types of alternative medicine, from Shaklee, Herbalife, chelation IV therapy.... She has also tried Steroids, but it was only a temporary cure, and then her symptons would com back worst. What I was wondering, is if you or anyone else would be aware of anything possible to help her get better & feel better. Thanks.
|
|
|
|
kk
Junior Supporter
Posts: 2
Joined: Feb 2005
|
|
3/15/05 6:13 PM
|
|
Wow do I relate to you Pebbles. I am now 24, and I was 21 when i was diagnosed (with symptoms since I was 15) and was in a serious relationship while it all happened. Fortunately, my boyfriend (now husband) was amazing and really stood up to his mother. She was in total denial and shock and could not except things all. My boyfriend went through his fair share of thoughts and emotions but ultimately was able to stand up for himself, regardless of his mother's attitude. My only (humble) advice is to talk to him. If he is the right one than it really doesnt matter what his mother thinks, he has to make the ultimate decision about what it means to be with you, regardless of MS or not!!  I also know how hard it is to be faced with a disease like MS and not tell any of your friends. During my initial diagnosis time, I became very introverted and did not talk to any of my friends, because I was just too emotional and could not relate to problems like not getting an A in a class while I was dealing with trying to get what felt like 10,000lb legs to make it across the street! After losing a few friends who couldnt deal with my "rudeness" I learned who was the true thing, and decided to tell one really close true friend and it really helped to have someone who wasnt a family member on my side. Well, after that whole long shpeil, please feel free to email or post back, I'd be more than happy to listen or help out anyone on this site. Take care 
|
|
|
|
kk
Junior Supporter
Posts: 2
Joined: Feb 2005
|
|
3/16/05 10:32 AM
|
|
The best way that worked for me and my husband was to go slow. Any pressures were thrown out the window and we just focused on us. We stopped talking about what life would be like together and just started living life together. We knew that we would find resistence (his uncle told him i would die from MS, thanks that helps alot right??) and i must say i think it was my husband's stubborn nature that saved our relationship. His refusal to let family and friends affect our relationship was out sustaining force. I was definitely insecure and felt "second class", i went from a confident girl who wouldnt settle to a complete doormat. I wish I could tell you that it was something I said or did, but it was the opposite, holding back, giving space (while still keeping in contact) but just letting things chill for a while,not having major emergencies all the time, really worked for us. I do not know every detail of your situation, but I know that sometimes just letting things be for a while can help alot. That's not to say I ever gave up on us, I kept working on our relationship and improving it, but I just let the whole "parents, MS thing" go by the wayside, and let him come to his own conclusions.
I hope some of this helps, keep me posted on what happens!
|
|
|
|
The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.
If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.
|
freddie