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FORUMS > General (Orthopedic)
Replying to Topic: dwarfism
Created On 2/26/07 11:59 PM by Ziri


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Ziri
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Joined: Feb 2007

2/26/07 11:59 PM
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Our 13 year old daughter has spondylo-epiphyseal dysplasia (SED) congenita, a rare and very severe form of dwarfism. Does anyone know of anyone with this or other forms of dwarfism? Ziri
 
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momof7
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2/27/07 9:25 AM
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have u tried hooking up with chai lifeline? they may be able to refer u to some other family with anything related to this specific diagnosis. hatzlocho
 
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momof7
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2/27/07 9:27 AM
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ziri, if u need anymore info, pls pm me. momof7
 
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Ziri
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3/1/07 6:14 PM
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We are very familiar with Chai Lifeline-thanks. Happy Purim
 
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