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DevorahLeah
Junior Supporter

Posts: 2
Joined: Apr 2005
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4/27/05 5:28 PM
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Hi! I'm new here so please excuse any stupid questions. I am 23, and am expecting my second child this summer. I was diagnosed with Ulcertive Coloits about 2 years ago after suffering for almost ten years. I was perscribed Asacol, seems to help, but could be much better, recently my dr. added Mercaptopurine, and the number of Asacols I take daily keeps changing, now I'm on 8 tabs, I'm scared to tell him that it's not that great, cause he'll just up it to 10! Diet doesn't really seem to help, I was off dairy for a while, off spicy foods (which I think does help). what's this about Remicade? How does it work? I never heard of it. I'm thinking of finding a new dr. should I?
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member
Junior Supporter

Posts: 12
Joined: Jan 2005
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5/16/05 9:20 PM
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dear devorah leah - first of all besha'ah tova!!! I am also 23 -although single and with crohn's...one thing that i know for sure is that you must be honest with your doctors -even if it means increasing your dose of asacol! (I take pentasa/mesalamine which is in the same class of drug as asacol, and at one point I was taking 16 a day along with other medications -so it could always be worse!) It'svery importatnt to have an open, honest and trusting relationship with your doctor - if that means finding one you can trust better an feel more copmfortable with, so be it however you might want to wait until your "flareup" - is there such a thing with UC?- is over before switching to a new doctor. Also, I have been told that it's worse to have a flareup while being pregnant than taking medications to control it...this may be different with UC than Crohn's- but still, I think you should tell your doctor of your symptoms and get your UC under control - especially being pregnant! hatzlacha rabbah -and feel good!!!  hang in there...
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member
Junior Supporter

Posts: 12
Joined: Jan 2005
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6/2/05 11:18 PM
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Ray - I have read parts of the book...before my surgery when my flare was really bad and I was willing to try anything. Since my surgery I had forgotten about it because I have had no symptoms bli ayin harah. Now I will look into it again because it would be nice to push off any new flares as long as possible. For some reason I can't access the website...can you please write out the address? I am happy to hear that you are feeling well b'h - any small progress is motivation to continue! keep it up!!  -member
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