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FORUMS > IBS Irritable Bowel Syndrome
Replying to Topic: IBS
Created On 2/6/05 1:53 PM by iSufferAndTry


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iSufferAndTry
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2/6/05 1:53 PM
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I was told by my doc that i may be suffering from ibs, (Iritable Bowel Syndrome) anyone here knows more about this? i had it much worse in the summer , its improving but its still not 100% ok.
 
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username
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2/7/05 12:39 AM
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Ive been diagnosed with IBS for about 8 years now. IBS is indicated for people with various otherwise undiagnosable gastroenterological symptoms. Im currently taking dicyclomine, your doctor may prescribe something different depending on what your symtoms are.
 
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Ray
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2/7/05 1:00 PM
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Hey isufferandtry,
that's what I have too!
 
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iSufferAndTry
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2/8/05 1:49 PM
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Thanks for both of your reply's
 
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emmapeel
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2/12/05 6:37 PM
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www.helpforibs.com has a good mind toward help for ibs. good luck!
 
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bubbex2
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2/13/05 9:51 AM
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I have had IBS all my life. I 'm not a doctor, but I can try to answer your questions. So far, I've not had anything that helps. I know that's not very reassuring, but it's reality!
 
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helpless mom
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2/23/05 10:37 PM
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I have suffered from stomach issues for many years and have seen various GI's recieving multiple diagnoses. What i have learned, is that IBS is the garbage can for any unexplained stomach issues. There are various kinds of IBS and each kind must be treated differently. As with any ailment, there is no one medication that works for everyone. It is a matter of finding the right one that works with your body and deals with your specific symptoms. Stress certainly aggravates IBS, but hey, you find me a jewish mother without stress! Godd luck and keep us all posted.....
 
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chanieF
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3/1/05 11:01 PM
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there's an EXCELLENT IBS diet by heather van vorous-her books are worth reading, and you can pretty much get all the info you need about the diet online. it is not a crazy diet that is impossible to adhere to. as she explains, it's not just what you eat, but how you eat.

however, it is true that many are misdiagnosed. especially in women, where it is usually a misdiagnosis for endometriosis. in this case, fully removing the endo and/or adhesions should resolve the ibs-like symptoms. (however, an ibs diet would still be beneficial)
 
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AskADoctor
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3/8/05 3:46 AM
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I suffered with IBS for 8 years. Diets, 'natural pills', chiropractors, prescriptions wont do the trick for most patients but there is hope... scientifically backed hope...

A [very basic] background:
IBS is categorized as a "Functional Bowel Disorder". Often it is referred to as a "brain-gut" disease, meaning it's part "physical" and part "mental." (aka "psycho-somatic") ***Don't worry: IBS is not just in your head. You're not crazy...it is a real and physical discomfort... However, a major part of successful treatment is being able to manage and control your brain's reactions to symptoms and sensitivities.

IBS works in a cycle: you have a real pain, your nerves (IBS patients’ nerves are more sensitive in the GI tract than non-IBS folks) react strongly, your brain translates the pain, reacts in a stress pattern, and your stomach reacts to the stress causing more pain! The cycle continues.

Thus... It's important to treat the psychological aspects - and most GI doctors don't know to help you with this. They'll write you a prescription and send you on your way... but you're missing half the treatment! Studies have shown repeatedly that Cognitive Behavioral Therapies (6 weeks of treatment or less!) help you achieve control over your pain (right now I'm sure it feels IBS is controlling you!) and decrease your symptoms drastically.

Why haven't you read or heard about this? Unfortunately, the research is fairly new & most people (including most Gastroenterologists) aren't up-to-date on their IBS info. Diets and routines you'll find through Google may work for individuals, but they have little scientific credibility. [Note of caution: Most 'ibs diets' are shams - someone trying to sell you an "e-book" online. There is *no* substantial data to suggest any diet will affect IBS. That being said: things that upset most people's stomachs can have a strong affect on your system. Avoiding highly processed foods, corn syrup, dairy if you're lactose intolerant (get tested!), spicy dishes, and oily foods, etc... will keep the frequency of pain down a great deal - and it's the healthy way to go even w/o IBS] Getting good fiber helps patients as well. Ask your doctor and make sure to use a fiber that doesn't promote gas, such as Citrucel tablets.

So WHO can you turn to for help?

Researches at the University of North Carolina's "Center for Functional GI and Motility Disorders", led by Dr. Douglass Drossman, are repeatedly funded by the Government's National Institutes of Health (NIH) for their successful and promising research. Their site provides valuable patient information at: http://www.med.unc.edu/medicine/fgidc/public_education_materials.htm

In New York City, with Mount Sinai Medical Center, Dr. Charles Gerson (a GI doc) and Dr. Mary-Joan Gerson (psych) work together to treat IBS. Read about the approach here: http://my.webmd.com/content/article/76/90102.htm (NYC phone#: 212-496-6161 ; their website, with helpful IBS info: http://www.mindbodydigestive.com/)

*** It's important to get tested for all possible organic causes of abdominal pain. If you are over 40, or have a family history of colon/GI cancers you should be getting regular colonoscopies. There are non-invasive, 'virtual' options to do this sometimes! A day of discomfort, however, is better than a life of pain. Ask your doctor. ***

NOTE: Don't use online remedies. Don't get help from someone without being examined and treated by an MD... and in the future, find a better source for medical help than 'frumsupport' - there is nothing uniquely 'frum' about IBS, so don't limit your research. Visit a site like: http://www.ibsgroup.org/ or WebMD for more info on MD's in your area and the latest research.

Refuah Sh'lema
- A




Edited: 3/8/05 at 3:52 AM by AskADoctor
 
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Ray
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3/8/05 11:58 AM
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Thanks for the great information, i'm gonna check it out!!
 
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chanieF
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3/9/05 12:58 AM
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in addition to using the IBS diet by HVV - which can be a life saver- (and women ruling out endo), something else to consider..can't believe i forgot!

there was a sdtudy a # of yrs ago at cedar sinai in CA that found that MANY with IBS (they first ruled out other conditions) had too much of a specific bacteria. they were then treated with a specific antibiotic and i believe had more than a 90% success rate. (like the idea of ulcers being caused by H. Pylori)
 
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Ray
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3/29/05 5:25 PM
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Hey ya all,

i was just checking out a site and found these two sites that may be helpfull, i didn't check it out so I don't know but it may be worth it.

www.paulnison.com
www.rawlife.com

you can call this guy at 917-407-2270 he says he is healed from IBS for 10 years now.
his name is Paul Nison.
GOOD LUCK
 
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Stars N Sky
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6/8/05 12:42 PM
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What is the core diffirence between all GI problems ? Can anyone explain this?

Refuah Shilaima.
 
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Ray
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6/8/05 12:51 PM
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Check out
webmd.com
and this website

Digestivewellness.com

feel good

i have crohns.
do u have something or u think u have something?
 
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Ray
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6/8/05 12:56 PM
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check out medicinenet.com

 
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Stars N Sky
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6/8/05 1:22 PM
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Thank You for the site refferals. I knows somenoe who struggles with chrons. i may have something and am trying to educate myself.

Refuah Shilaima.

Thank you
 
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frumi11
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2/6/06 6:48 PM
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hi -
I wish you well. I have been diagnosed with IBS for many years by now. It can be seasonal or brought on by stress or foods. I am a 3 out of 3 . I have had a flare up for the past week. I have been in bed and have cried through the days many times. What works by me unfortunately are painkillers. I usually stop eating just about everything but I know that certain foods are complete no-nos. It is a trial and error basis for each individual. I have tried all the meds that have just come out or that they took off the market and brought back on. Unfortunately the pain-meds are what keeps the cramping or horrible pain at bay. Make sure though that you do not get dehydrated or if you see blood then you MUST go to your doctor or ER, In time you will know your body and the different pains and you will know whether it is an IBS pain or something else. Good Luck and I wish you well - I truly know what you are going through.
 
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Ray
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2/7/06 10:32 AM
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frumi11

Hi, can i make suggestions?
actually first of all i wish you a refuah shlayma!

Now...
did you check out the website digestivewellness.com??
did you read elain gotshall's book?
did you see a kneiziologist( don't know how to spell it) ?
did you read Dr. Sarno's book?

i have done all of the above and boruch hashem on my back to being normal
medicine didn't help me either.
i hope this helps.
if you havn't seen one or more of the above,think about going.
if you have questions, ask!

Ray
 
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frumi11
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2/8/06 12:58 PM
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Hi Ray -
Your response brightened up my day. It has been day 9 since my flare-up. It is hard to be optimistic already. I push myself if not for me than for the sake of my husband and 3 children. I am scared that I will go through another flare-up like I did a fewyears ago which lasted for over a year with me in and out of the hospitals and on IV even at home.
I will start looking at what you gave my as suggestions. Thank you so much, you are very kind. Not many people truly understand what IBS is or how painful it can be. There is alot of pain and then one gets nervous which just adds to the pain it is a cycle.
Once again thank you so much,
Frumi11
 
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Ray
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2/8/06 3:55 PM
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Dear Frumi11

I'm so glad to have brightened your day!!
If you live in The brooklyn area, there is a woman that sells the specific foods ready made so it's easier for us to be on the diet and be healthy. she sells them at cost price of the ingredients, it's like a gmach kinda thing. she has volunteers to make the food.
she has a list of good things to eat! try and eat chicken soup, light foods so your stomach can tolerate it.
let me know how it goes!

I hope t he recommendations I gave your are helpful.
they be a bit contradictary or confusing in the beginning but i found that after i sat down and compared and it REALLY helped me.

have a great day - night. and of course feel better.
BE strong.

Ray
 
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FORUMS > IBS Irritable Bowel Syndrome

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