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TOPIC TITLE: Asperger's/High Functioning Autism in Yeshiva
Created On 11/24/04 8:47 PM
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Boy's-mom
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11/24/04 8:47 PM
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I know we are not the only family dealing with this, but would love to hear experiences and ideas for dealing with our son's yeshiva. He is likely to hit the wall soon, where he will not be able to continue in a 'regular' yeshiva without some in classroom support. Until now, his high IQ which is part of his Asperger's has provided a cushion. I'm not sure the Yeshiva will agree to that, and I don't have a sense that there are any options in the frum community for him that will be appropriate.
 
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downsyndrome
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I don't know whether you are looking into chassidishe or non-chassidishe yeshivas. You can certainly call Leah Steinberg at Agudath Israel's office and discuss it with her. She has a wealth of information about yeshivas that deal with students who have special needs - the entire spectrum. You might also want to contact the BJE - Board of Jewish Education. They even have a branch called the Board of Jewish Education for Special Education.
In Brooklyn there is the ICHUD program, which was modelled after the CAHAL program in the Five Towns and Far Rockaway. They also do wonderful things for students who are borderline - can't quite make it in a regular classroom, but don't quite belong with students who are severely cognitively impaired. Give 'em a try. Good luck. Gut Shabbos. Sarah S.
 
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shmooze100
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I can definetly relate to this isssue. I have 7 yr old son with PDD NOS. I have homeschooled him for the last 2 years because ther were no other options. B"H The community that I live in has recognized this problem and we are about to open a Theraputic yeshiva day school program in febuary. The program is not limmited to only those with PDD or high functioning autisum. It is for children that require therapies such as speech, OT, PT or social work services. The only program that I know of that may be apropriate in NY is OHR BECAN in brooklyn. It is a program with in a main stream school. I know the frustration you feel. I hope you find a good solution soon.


Edited: 12/29/04 at 5:48 PM by shmooze100
 
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imma
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My son has mild AS and has been in quite a few school settings because of his unique situation and due to the fact that we've moved quite a bit. Now B"H he is fully mainstreamed in a jewish day school (not an easy feat) and we are working with the school and outside support to best tailor his learning and behavior exceptionalities to help him fit in both academically and socially the best that he could. It has been a tremendous challenge as we need to constantly assess the abilities and shortcomings of our child and be his advocates in a system that doesn't really understand these children or what makes them tick (after all we are still learning ourselves). I try to be realistic but idealistic as well and challenge my child to reach his potential. I also ask the school to set their goals just a little bit higher,too. It's hard for him to stay focused in class, although academically he's very bright, and his major issue is getting the social picture of what's going on around him. I wish you hatzlacha in finding the right setting for your child. We've done it all...cheder, special ed, day school, public school, etc If I can give someone else out there a little chizuk I would be delighted and maybe get some ideas and suggestions as well. Thank you frumsupport for creating this forum, I think it can be well utilized.
 
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downsyndrome
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Spirit! magazine just ran two articles in their past two issues, written by the mother of a child with high-functioning autism/Asperger Syndrome. The title is 'The Three R's of Mainstreaming - Realism, Recognition and Responsibility' - by Gitty Schreiber. It is a must-read for all parents who have children with similar disabilities. Good luck!
Sarah S.
 
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BRBS
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What is spirit magazine? I would love to read that article.


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Besides that Mrs. Lincoln how was the play?
 
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KEEP ON SMILING
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Spirit! Magazine is published quarterly by Yedei Chesed. You could find them at
http://www.spiritmag.org/


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Smiles Are Free!

Edited: 1/19/05 at 10:54 AM by FrumSupport Moderator
 
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jezor
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Our son Avi, now 10 in 4th grade, is also HF and very bright. He has been in the regular class at Yeshiva Har Torah in Queens since kindergarten, and has had a full-time para since 2nd grade. It's gone very well, and the yeshiva has been supportive, but we're also hitting the wall in terms of his ability to control his emotional outbursts, and we're struggling with what to do with him next year and beyond. You may also find Kulanu to be a very helpful organization, particularly its Kulanu Torah Academy. Good luck to us all! {Jonathan}


-------------------------
Jonathan Ezor
Father of Avi (Age 10, on the spectrum), Eitan (6) and Elisheva (3)
 
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leahh
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Thank you to all of you for your thoughts and words. At the end of a long week with many ups and downs with our son with AS who is almost 11, finding this forum on the web tonight definitely was a blessing. Our son is also mainstreamed, but in Israel, in a very special school that was created in order for children with special needs to have an appropriate place to be. Both my child with AS and one of his (regular ed.) siblings learn together in the same school. THere are 3-4 children with a variety of special needs mainstreamed into every class. Every class has two teachers - one who is a regular ed. teacher and a second, special ed teacher who helps the children with special needs to be integrated in all ways and to give support (academic and otherwise) as needed. It is a beautiful school.
I am interested to be in touch with parents exploring Biomedical treatment for AS. My son has been on a gluten and casein free diet for years and we have tried many biomedical interventions over the years as well. We recently were at the Pfeiffer Treatment Center outside Chicago for comprehensive testing and treatment planning, once and for all. We hope that the treatment we are just about to start under their direction will make a difference.


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Leah Hochbaum
 
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jezor
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Our son has been GF and CF for years, and while we haven't seen any miraculous behavior changes, it did help some major digestive problems he had.

One lifesaver has been a really easy, good recipe for GF/CF bread, from Lisa Lewis' Special Diets for Special Kids. Note that it's not a particularly doughy mix--we end up mixing the ingredients in an electric mixer until they're the consistency of thick pancake batter, then pour into a bread pan or onto a cookie sheet. For rolls, just spoon out circles. This quantity makes about 1 normal loaf plus 3-4 rolls, but your mileage may vary with the size of your baking pans. Remember to allow room to rise.

Dry ingredients:
2 cups white rice flour (We use Goya)
2 cups tapioca starch (We use Ener-G)
1/4 cup sugar
1 1/2 tsp salt
4 heaping tsp xanthan gum
2/3 cup Vance's DariFree powder

Yeast Prep (put in separate cup, and allow yeast to begin rising before adding to rest of ingredients):
2 tsps sugar
1/2 cup warm water
4 heaping tsp dry yeast

Wet ingredients:
4 Tbsp vegetable oil
1 tsp brown rice vinegar or cider vinegar
3 eggs
1 1/2 cup warm water

After mixing and pouring into/onto baking surface, allow to rise, then bake for 20-25 mins (for rolls) to 50 mins (for full bread) in 400 degree oven. The bread actually looks and tastes good, although it goes stale very quickly. Enjoy! {Jonathan}


-------------------------
Jonathan Ezor
Father of Avi (Age 10, on the spectrum), Eitan (6) and Elisheva (3)
 
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leahh
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Dear Johnathon and everyone,
We have also been GF/CF for years and as you described, saw no magic behavioral changes, only gastro improvements. Thanks for posting the recipe. It is a good one.
I was very curious about another issue: siblings of ASD kids who share the GI issues. I have a little girl who is not at all ASD but has many GI and immune system issues my ASD son has. Anyone have any thoughts on this one?
Leah Hochbaum
mother of Nachman (12), Yedidya (10)- with ASD, Shlomo (8) and Shalhevet (3)


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Leah Hochbaum
 
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jezor
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Our middle son, who's not on the spectrum, also showed the same sensitivity to gluten (though not dairy). We spotted it (so to speak) because of his loose stools, and had him checked. He ended up showing "soft signs" for celiac, though no damage (thank Hashem) to his cilia yet. Both boys have been on gluten-free diets ever since.

My daughter was kept gluten-free via my wife through gestation and the nursing period, just in case. She, thank Hashem, appears to be able to eat everything. {Jonathan}


-------------------------
Jonathan Ezor
Father of Avi (Age 10, on the spectrum), Eitan (6) and Elisheva (3)
 
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leahh
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Dear All,
As I live in Israel, I don't know what the real situation is in the USA versus here. My perception is that the biomedical aspects of autism (related to the need for the gf/cf diet, etc.) is much more well known and wide-spread than it is here. Almost every website I open regarding Autism makes mention is is primarily focused on this aspect. Here in Israel, non of the professionals at any of the conferences I attend even mention it, and I have not been able to find one doctor here to guide us in this area. Is it really true that the biomedical side of autism is well known in the US or is that my imagination?


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Leah Hochbaum
 
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meira
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We actually use some biomedical approches to treating our son who is 4 1/2. We were gfcf, now we are on the specific carb diet and we are giving MB12 shots and are currently starting supplements. We have also done the Sensory Learning Approach with him (not to helpful for him). I would be interested in finding out more about the Pfeiffer institute, what they do etc.

-meira


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meira stein
 
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leahh
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I found out about the Pfiffer Tx Center through the autismtoday.com website - in their on-line lecture series. One of the lectures is given by Dr. Walsh - the head of the Pfieffer Tx CEnter - and he fully explains their extensive research (on over 3,000 kids) and protocol to rebalance the kid system on a metabolic level. The Pfeiffer Tx Center can be reached at www.hriptc.com. We were just there and did extensive metabolic testing and are about to start their protocol. I'll let you know how it goes and what progress we see, B'ezrat Hashem.

I just heard about :"specific carbs"diets and MB12 shots. Please share more with us about that. How does it differ from the gfcf diet? Who is guiding you with doing this stuff?
Leah H.


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Leah Hochbaum
 
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meira
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I switched to the SCD diet from my own research. It does not allow for potatoes or rice either, no sugar, except honey it is much more restrictive. The book that explains it all is "Breaking the Vicious Cycle" by Elaine Gottschall. It is basically no carbs except for those found in some fruits and vegetables. It also does not allow for buying things store bought. We make our own applecause, mayo etc.

The MB12 shots as well as the suuplements are being prescribed to us by our DAN doctor, Dr. James Neubrander in Edison, NJ. Are you familiar with DAN protocol?

Let me know what other info. helpful.

meira


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meira stein
 
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proudmom
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I would love to know where I can get a copy of these articles that you mentioned. I dont even know about this magazine (Spirit!) How can I obtain these articles?
 
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proudmom
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Tonight, my first time on this web site, I felt a little relief. As terrible as this may sound, it lightens my load to hear from other frum people in similar situations like myself. I feel like the whole world is going on and my life has stopped.
I have two children, 4 years old and 2years old. My 4 year old is very smart and is very high functioning PDD. My second child also has alot of developmental delays. I am busy with them 24/7. I just feel like this is what Hashem has created me for. To take care of my kid's issues. I lost most of my social contacts because I have little in common with anyone anymore and everyone's worries seem so silly to me compared to what I am busy with. I just feel so alone.
Coming onto this web site has been a great relief and source of information.

Regarding GF/CF diet:
I my older child has been on it for 8 months. I have not seen it improving his behaviors but he used to have ezcema and bowel issues. It has subsided a bit. The diet is especially hard for us since my son has allergies to many other foods that others may use as a substitute in this diet.

I know there is controversy on medical intervention. But we are doing it now with my son, and have had a big breakthrough in his behavior issues. He is finally able to learn without constant interruptions with tantrums. There are many different medication to explore. I am not referring to strong ones (risperidal or abilify). My son is now on ritalin, even though he does not have ADD, and B"AH it is really calming him down. I think it is worth exploring.
 
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meira
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If you go to www.spiritmag.org you can click on the subscribe button on the top of the page and you can subscribe to the magazine. It is a wonderul magazine and almost every issue has something on PDD/Autism.


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meira stein
 
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leahh
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I also find this forum a relief - as I also feel cut off from many of my friends / neighbours due to my intensive involvement in helping my son, plus doing eveything else life demands! But it is also very clear to me that this is my avodas Hashem - that I am doing exactly what Hashem wants me to be doing - and that is a good feeling.
Re. DAN doctors: There are NO DAN doctors in Israel. The whole reason we went ot the Pfeiffer Tx Center is that we've been trying to do all these biomedical interventions on our own from Israel, and haven't been too successful. We felt our son deserved a chance of significant improvement via proper medical intervention - now or never (he is 10 1/2 already). My daughter (3 1/2) also exhibits many of the biomedical issues my son has. Thank G-d we never immunized her - I can only imagine what her upside-down poor detox system would have done with immunizations! We are trying to do testing for her from here - via the GReat Plains LAbs (we couldn't afford to take both of them to the USA. SHe, B"H is not at all on the spectrum). In short, I would like to find a DAN doctor who might be willing to help supervise us from a distance. That is, we would do all the biomedical testing from here, send the results to the doctor, along with any other info. needed, and would follow any protocol of treatment they would then prescribe based on the teat results. If anyone out there has a doctor who is worth contacting in this matter - please let me know. It would be a great mitzva to us.
SHabbat SHalom to all,
LEah Hochbaum


-------------------------
Leah Hochbaum
 
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proudmom
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Does anyone know which lawyer is the best to go through for the board of ed (in New York)? I am hearing so many names but am not sure who to go with.
 
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bmr
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She's not a lawyer, but call Joan Harrington - Educational Advocacy Service at 718-252-6682.
I know there's a secretary and answering machine to go thru but if you can actually get a consult with Joan (yes there's a fee, this is her parnassa) you will have reached one of the "tzadikei umas ha'olam" who is totally l'shem shamayim and really out to help the frum community. I can tell you dozens of stories of her "mesirus nefesh" for our community. She's a professional and a parent too...
 
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Boy's-mom
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Forgive my ignorance, but what is DAN?
 
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jezor
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DAN, for "Defeat Autism Now," is a project of the Autism Research Institute. It focuses on the scientific study of autism, its causes, and its treatments. DAN sponsors the extremely interesting DAN Conference, and created a protocol for treatment followed by certain doctors (hence, they are called DAN doctors; there is a list on the DAN Web site, which lists one in Israel). {Jonathan}


-------------------------
Jonathan Ezor
Father of Avi (Age 10, on the spectrum), Eitan (6) and Elisheva (3)
 
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Wallachj
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Dear Boy's Mom,
I am a social worker in Brooklyn, New York and I have a 9.5 y o male patient who is in the Ha-Or Beacon Program at Yeshiva Darchei Torah and he is doing nicely with cooperation from the school staff. I would be happy to discuss it with you further.

Jeffrey Wallach, LCSW-R
Days - 718 245 2520


-------------------------
Jeffrey M. Wallach, LCSW-R
 
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leahh
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I was just reading Dr. Neustader's website regarding the MB12 shots. Meira Stein- can you tell us more about it firsthand? I'd love to hear from other parents as well, of course. What does it entail? What kinds of changes did you see in your child via this treatment? What other supplements are you now using via Dr. Neustader? Do you know if he ever works with people who can't come to his office per se (via blood tests, etc. from a distance)?


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Leah Hochbaum
 
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Bitachon
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We also use Dr Neubrander. From my knowledge he does accept to speak and follow up with patients oversesas. We find him very smart and uptodate, however very expensive, but it is reaaly worth it, he Boruch Hashem was a good shaliach to us together with ABA.
I would call his office, speak to Tanya(his daughter), and request info. You can find his phone on his website.
(we did gfcf, gastro testing,zillion supplements,methyl B12 shots etc)
Hatzlocha RAba
the shots are tiny, very easy to give(usually if well done, our son does not even realize it, we do it while he is sleepinf every3rd night),we definately saw improvemnts in focusing,verbal expressions, attendance. Today our son boruch hashem does not have a diagnosis.
 
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meira
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Hi there1 I know more information about Dr. Neubrander was requested a while ago but with Purim I have not had two seconds to breathe.

My son was on the GF/CF diet and is currently on the SCD. We started with Dr. Neubrander is December 2004 and we saw a remarkable difference in his attention span, play skills and overall togetherness since we began. Dr. Neubrander is expensive like someone else mentioned but who isn't? I believe he does deal with patients out of the and charges for phone consultations. He is a bright man who focuses his whole career on these children.

We also give the shots at night while our son is sleeping after using an anesthetic cream. Our son is currently taking nystatin, calcium, multi-vitamin, omega-3, magnesium, vitamin c, vitmain e, probiotics, lipoceutical glutathione, folinic acid and we add more each week until he is up to the amounts that Dr. Neubrander wants him to have.

Any other info. I can provide for you, let me know.

meira stein


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meira stein
 
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chanieF
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alot of GREAT info here. one thing to add..i'd consider some therapy with an optometrist who does vision therapy with special needs children, including autism (i'd ask up fromt b/c not all who do VT do special needs and/or autism). check out this link http://www.covd.org/od/autism.html
 
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bmwachs
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It's been awhile since anyone's posted a message here, but my question is this - we also live in Israel and my son (diagnosed with Asperger since age 11) who is now almost 22, also suffers from various gastro problems. Did you ever follow up on the biomedical treatments you were considering for your son? I also notice that there is a DAN doctor in Israel. Did you ever contact him and was he helpful? My son is attending a very special yeshiva in the Old City for high-functioning special needs young men.

Thanks for any information!

Barbara
 
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shlomo
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Hi in case you are interested a new camp is opening this summer for children with autism and aspergers syndrome. Its called Camp Ahuvim
You can receive more info by emailing: info@campahuvim.org .
 
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