Login
Questions or Comments!
admin@frumsupport.com

Get FrumSupport News! Join our mailing list.
Email:


Search

Navigation:

 Tehilim List  < Refresh >
TOPIC TITLE: Maybe MS?
Created On 11/8/09 1:04 PM
Topic View:

View thread in raw text format


freespirited1
Supporter

Posts: 39
Joined: Oct 2009

11/8/09 1:04 PM
User is offline

How did the people here get diagnosed? I'm sixteen, so no doctors feel like listening (as if I'd make this stuff up!) I have muscle weakness that's so bad that my legs just feel tired all the time (which is very uncomfortable, and enough to make me afraid to go to sleep at night, for fear that I won't be able to move my legs in the morning). My left shoulder is almost completely numb, I can't tell imediately whether something is hot or cold-even if it's in the extremes of the temperatures, I get muscle spasms, tightness (which mostly comes from cold weather), a pain that feels like it's coming from deep within my bones. I have joint stiffness and pain if I keep them in one position for too long, I have memory problems-I literally can't remember what I have for breakfast and I have the same thing every day. I can hardly carry a conversation some days because I forget what the person was talking about-in the half of a second before I start talking! There's more, but I can't remember it right now.

I'm scared out of my mind because no one wants to listen to me and I know that something's wrong. It's not the first time that I had something wrong with me and the doctors wouldn't listen-and I turned out to be right! I haven't been wrong since I was eight (although, that time, the doctor actually listened to me the first time around).

I know that this post was a little long, but it's probab;y because I'm scared. I'm having an EMG a week from tomorrow, and I'm getting a brain MRI soon, too. But I'm scared that the tests will show something horrible (worse than MS) or nothing, which would be typical of me. Which tests were essential in your diagnoses? Which symptoms were the ones that alarmed the doctors enough to test? (I've found that, quite often, the symptoms that bother me the most aren't the ones that lead to the diagnosis because the doctors don't consider them urgent, just annoying.)

I really appreciate any help or suggestions. I'm so scared about what could happen! I thinmk I'm more scared now than I was when my mother was diagnosed with cancer (she died last April-my symptoms didn't start until June, and I don't think this is stress-related). Can anyone help me?


-------------------------
Smile; it's what your mouth is there for
---
I have the short-term memory of a carrot
---
The early bird catches the worm, but the second mouse gets the cheese in the trap
 
Reply
   
Quote
   
Top
   
Bottom
     



Gam Zeh Ya'avor
Junior Supporter

Posts: 2
Joined: May 2009

11/8/09 9:25 PM
User is offline

I was having pain in my arm and shoulder for a few months until they did an MRI. Some doctors that I spoke to were pretty surprised that I was diagnosed with pain being my only symptom, and because of some lesions on the MRI. I took a follow-up MRI of the brain and spine abt 6 months later. But the test that really proved the diagnosis was a spinal tap that I did a few weeks ago... I was so frustrated going from doctor to doctor until I was diagnosed, each telling me it was something else (tendonitis, carpal tunnel syndrome, an inflammation) while I was in so much pain and I could hardly function! I hope that everything turns out well for you...
 
Reply
   
Quote
   
Top
   
Bottom
     



keepsmiling
Junior Supporter

Posts: 4
Joined: Nov 2009

11/17/09 2:46 PM
User is offline

In my experience the main test that led to diagnosis was the MRI of the brain. My symptoms started with very strong tingling in my legs which was so irritating that it was difficult to walk. That went away after a few weeks, and then a few months later I started feeling overly sensitive to temperature on one half of my body and not the other. The tell-tale sign was the coming and going of symptoms, common in some types of MS. My doctor sent me to neurologist who tried to do a spinal tap and failed!! (She couldn't find the right spot) but based on the MRI she was pretty sure it was MS. I went to an MS specialist who told me that because I was still in the early stages of MS, a spinal tap may come out negative - even though I do have MS. My advice is, if you do need a spinal tap, ASK about the necessity, and make sure the doctor has a lot of experience! Some doctors have some kind of x-ray screen which they use to help them insert the needle properly. All the testing is unpleasant but I think the worst part is just not knowing what to expect. I was extremely claustrophobic by my first MRI so now I take valium pills from my doctor which help me stay relaxed during the MRI. I hope everything goes well for you.
 
Reply
   
Quote
   
Top
   
Bottom
     

View thread in raw text format
FORUMS > MS (Multiple Sclerosis) < Refresh >

Navigation:

The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.

If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.