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TOPIC TITLE: Noonans Syndrome
Created On 7/30/06 11:22 PM
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hiya
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7/30/06 11:22 PM
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Hi,

I was wondering if anybody heard of Noonans- and if you can tell me about it ??
 
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in the dark
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8/20/06 5:10 PM
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sorry, I didn't. good Luck!!
 
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bmr
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9/6/06 4:20 PM
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go to noonansyndrome.org or rarediseases.org for more info
b'hatzlacha
 
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hiya
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9/10/06 9:43 AM
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Thanx - I'm gonna check it out
I was wondering if anybody had some first hand knowledge???
 
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CAP
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10/26/06 11:17 PM
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I know someone with Noonan's syndrome.
if u think u have this you should see a genetisit, we reccomend Dr Bruce Gelb Mount Sinai Hospital NY. he is the world expert on Noonan.

Please feel free to ask more, we have a lot of answers!!


Edited: 11/18/09 at 9:57 PM by CAP
 
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hiya
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10/30/06 9:54 AM
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how is this child - does he/she lead a "normal" life? can u tell this child has a syndrome ??
 
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CAP
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10/30/06 2:34 PM
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This person has a mild case of Noonan's. pm please for more detailed info

Do you know or suspect someone with Noonan's? Have you been to a genetist?

We'ed really love to help you if you need any info, as we have done lots of research on the issue.


Edited: 11/18/09 at 9:57 PM by CAP
 
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hiya
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10/31/06 9:32 AM
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My son was diagnosed with a mild case of Noonans Syndrome
 
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CAP
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11/7/06 9:42 PM
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i sent u a private msg.. did u get it?

Would love to share Noonan info with you... It feels good that there's someone frum to talk to..
 
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CAP
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11/15/06 1:40 PM
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Anyone interested in Dr Gelb...

212-241-6012 is number to Kerry Lee. She is Doctor Gelb assistant & she very familiar with Noonans... call her ... and u'll eventually get to him also.

Dr Gelb will also correspond freely via email..


 
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Fakename
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9/16/11 12:50 PM
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I see you know something about noonan syndrome , if you could send me some info i would really appreciate it.
 
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CAP
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10/3/11 10:31 PM
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Why don't you private message me..
thanks
 
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sweetgirl
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1/24/12 10:34 PM
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I have clinical diagnosis of Noonans. Have done genetic testing and no genes have come up as positible


-------------------------
Leah Levine
 
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