Questions or Comments!

Get FrumSupport News! Join our mailing list.



 Tehilim List  < Refresh >
TOPIC TITLE: pediatric c-hypothyroidism
Created On 3/31/05 2:04 PM
Topic View:

View thread in raw text format

Junior Supporter

Posts: 1
Joined: Mar 2005

3/31/05 2:04 PM
User is offline

My 22 month old was born with out a thyroid. They bH caught it at birth through the newborn screening program (we were in Israel at the time). I am now using a pediatric endocrinologist at CHOP, and am happy with her care, but there seems to be very little information about these kids and their needs. Do you have any resources? I find myself worrying about things that seem odd, but neither the pediatrician or the specialist will definitively attribute them to her thyroid issue. Example: this winter if it was particularly cold outside I would find that when I went to get her out the crib from a nap her lips would be blue! She has had a very hard time fighting infection this winter. Her TSH levels and T4 levels have been ok, we have adjusted her synthroid every two months. I find that the endocrinologist is very busy telling me how normal she is and how wonderfully she is doing, but it seems like this is not as clear cut as that. Any resources for information would be appreciated.

View thread in raw text format
FORUMS > Endocrinology, Diabetes & Metabolism > Ask the Dr. Novogroder < Refresh >


The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.

If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.