Questions or Comments!

Get FrumSupport News! Join our mailing list.



 Tehilim List  < Refresh >
TOPIC TITLE: Ehlers Danlos Syndrome
Created On 12/2/05 9:32 AM
Topic View:

View thread in raw text format

Junior Supporter

Posts: 1
Joined: Dec 2005

12/2/05 9:32 AM
User is offline

I have a five y.o. grand daughter with Ehlers Danlos type VIIc. It is supposed to be a genetic disease but neither family has ever had this. She has four older brothers B"H who are healthy b"eh. Her only handicap is that her connective tissue (collagen) does not work right. She is main streamed in school and has a shadow. We are in touch with the EDS Foundation in California. Do you know of any physician or hospital specializing in EDS VIIc?

I would also like to hear from anyone who knows of someone else with this disease.

Thank you. Cyberomma


View thread in raw text format
FORUMS > Endocrinology, Diabetes & Metabolism > Ask the Dr. Novogroder < Refresh >


The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.

If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.