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TOPIC TITLE: Ehlers Danlos Syndrome
Created On 12/2/05 9:32 AM
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cyberomma
Junior Supporter

Posts: 1
Joined: Dec 2005

12/2/05 9:32 AM
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I have a five y.o. grand daughter with Ehlers Danlos type VIIc. It is supposed to be a genetic disease but neither family has ever had this. She has four older brothers B"H who are healthy b"eh. Her only handicap is that her connective tissue (collagen) does not work right. She is main streamed in school and has a shadow. We are in touch with the EDS Foundation in California. Do you know of any physician or hospital specializing in EDS VIIc?

I would also like to hear from anyone who knows of someone else with this disease.

Thank you. Cyberomma


 
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