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chana85
Junior Supporter

Posts: 3
Joined: Feb 2006
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2/16/06 2:37 PM
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bs'd Hello!! I'm Chana and i have been diagnosed with kidney lupus about a month ago. I think it's similar to system lupus - it affects the organs; in my case the kidneys are the ones which are severly attained. I'm 20 yrs old and have had to stop my studies. I live in Belgium, have been to seminary last yr in Israel and lived 2 yrs before that in Brooklyn, NY. When visiting my sister over winterbreaj i was taken the day before our flight back w/ Hatzala to the emergency room. They did some tests but we took responsability to leave coz we had a flight the next day. Right when coming back we got into emergency here. I was in the hospital for 2 weeks - I got 2x endoxan and in march i'll be getting the 3rd one. I take steroids too which have been reduced since this morning to 40mg. I take tons of medication and for all those of course other ones for the side-effects. By the 3rd dose of endoxan they'll decide if i'll need another 3 months or not. At the moment im having it hard. My mother is very much in contact with the organisations in Belgium - but there's no such thing as a supportgroup for lupus patients, for sure not a jewish one. This is why my mom got very excited about this website where Jewish ppl can be in touch and support each other. I hope we can be in touch about our disease. I'm sorry if i elaborated about the medication! Have a Shabbat Shalom u'Mevorach!!! Kol Tuv! Chana.
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