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TOPIC TITLE: spasmic pain & remicade
Created On 1/25/07 12:59 AM
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Mrs. Crohn
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1/25/07 12:59 AM
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The last few days, I'm having abnormally strong contractions (spasmic pain, I guess) that is just unbearable. How do you people cope with it? (At least when I'm in actual labor I can take epidural, now there's nothing I can do to ease to terrible pains). I find that the pains keep on becoming stronger and stronger each passing day, which makes me worried, in addition to not handling the pain.
Secondly, I might be starting remicade. What did you hear about it? What are the risks/benefits? I prefer remicade to cortisone although I'm not quite sure about it....
Let's all have a refuah sheleima.
g'night!
 
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cd123
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1/30/07 7:42 PM
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I wrote back to your PM...
 
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BH613
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1/31/07 4:12 PM
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My son has chron's and has been on remicade for 2 years and B"H has been much better! It is amazining at the differnce. He was in extreme pain, had lost lots of weight and was so ill pre-remicade.
Hatzlocho.
Miriam
 
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Mrs. Crohn
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1/31/07 4:19 PM
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How long do you stay on the remicade? I thought it is just for 8-12 months. Did your son experience any side effects?
 
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Edith
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2/1/07 10:11 AM
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I was under the impression that Remicade is a long term medication - to keep the disease under control and in remission - just like Imuran, etc.
After a while, you may be able to wait longer between infusions.
That's what I was told.
 
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BH613
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2/1/07 10:19 AM
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My docotr told me that he will be on it at least until he is 19 and done growing, but that he can stay on ity longer if needed. He has not had any side effects! B"H it has made a MAJOR difference in his chron's.
Miriam
 
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Mrs. Crohn
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2/1/07 10:35 AM
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I don't understand why I thought remicade is just a few infusions. I didn't know it can go on for years. (Or is it possible for an adult there are fewer infusions).
Miriam, how long does each infusion take, and how does your son feel afterward. Is he up and about by the next day?
thank you all for responding.
 
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BH613
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2/5/07 3:49 PM
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Mrs. Chron,
My son usually feels fine after the infusions and has his best weeks after infusion. The first few times it took longer, about 4 hours, but now takes about two. He has not had a reaction and feels fine during and after.
Miriam
 
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cd123
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2/6/07 11:34 PM
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I was on Remicade last year. My first two infusions went okay, and during my third infusion I had a reaction and that's when I stopped remicade.
After the first two, I would go home feeling nauseous and quite weak. Usually headaches and no appetite for a couple of days and then I was okay. It's definately worth the effects if Remicade gets you into remission rather than surgery. Good luck!
 
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