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TOPIC TITLE: Remicade working time
Created On 3/20/07 9:24 AM
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Edith
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3/20/07 9:24 AM
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Does anyone have experience with being on remicade? How long does it take to start working? I have already gone for 2 infusions and I am still waiting to feel a difference.
 
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BH613
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3/26/07 11:19 AM
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It took my son two infusions to begin to feel better, but he feels great now! It is one and a half years later.
Hatzlocho and refuah shelaimah.
Miriam
 
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Edith
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3/26/07 11:50 AM
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Thank you for responding.

Is your son following any diet while on the remicade? Also, when you say feeling great - you mean he feels totally normal?
 
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BH613
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3/27/07 2:39 PM
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At this point, he is on no special diet, but only eats foods that agree with him, at least in his perception. He has stopped most cheese, spicy foods, fried foods, etc. For most of the time, he is great between infusions, until about a few days before.
I hope this helps,
Let me know if there any further questions
Chag Kasher V'Sameach
 
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Edith
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3/27/07 3:47 PM
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how long does he go between infusions?
Also, do you have any plans to try to wean off of the remicade at any point?
Thanks for your replies.
 
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BH613
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3/28/07 12:54 PM
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At first it was 2 weeks then 6 weeks then 8 weeks. After a few rounds of 8 weeks, he was having a tough 2 weeks at the end. We moved it up to every 7 weeks. B"H this is much better. Becuase he is still growing (he is only 12), the doctor does not want to make any changes until he is 18 as the ramifications could affect his growth, learning, etc.
Miriam
 
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