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TOPIC TITLE: surgery for colitis?
Created On 4/7/05 6:57 PM
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chip
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Posts: 6
Joined: Feb 2005

4/7/05 6:57 PM
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hi. i was wondering if anyone out there with colitis has had colon surgery - taken out their colon- and if they recommend it or not? Thanks.
 
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Baglady
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Joined: Feb 2006

2/28/06 8:48 AM
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Hi-
I had my colon removed about 18 months ago. Health-wise, it was the best thing I ever did. For the first time in many years, I am HEALTHY. However, I have had a lot of problems with hernias developing around my stoma, which necessitate more surgery. No-one warned me about this, so perhaps you should speak to your doctor about the chances of further surgery due to potential hernias? If you want more info about what to expect with the surgery, leave me a message here, and we can shmooze. Good luck!
 
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Sol
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3/27/06 10:23 PM
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Hi
I was diagnosed with (pan) colitis when I was 14 years old, and unfortunately I had a very severe case, when after a few months I stopped responding to the medication and subsequently had to be hospitalized, the doctors recommended surgery. At that point they put me on a immunosuppressant (Cylosporine) to which I eventually responded (due to a life threatening staph b infection which boosted my system.) I won’t go into detail of the years afterwards but it's safe to say that I tried everything, so as not to go into surgery (diet etc). When I was 19 it was getting out of hand and I went in for surgery and after 8 months went back for a reverse Colectomy. Personally I must say that this was the best thing I did for myself, although its not perfect I nonetheless lead a relatively normal life which by far, surpasses my teen years, yes there are potential side affects and yes I can still get a flare up (called Pouchitis, which if treated with antibiotics for a week goes away) but compared to all the side effects from the meds and all the time spent in the hospital, my life is amazing. Living in between surgeries with a stoma can be hard but it was worth it (even with the blockages). As for you I cant say one way or the other, but I think that if you can live a comfortable life without the surgery then go ahead, surgery is always a last resort, my case was a very severe case of colitis and my body was slowly wasting away, however if you feel that you warrant surgery then go ahead, the pros definitely outweigh the cons.

I hope I was of some help to you.

Sol


Edited: 3/31/06 at 2:05 PM by Sol
 
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Edith
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6/7/06 3:42 PM
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Yes. I was also wondering about surgery for colitis. Right now it seems the only way to go (except remicde, but i am very concerrned about the side effects of this drug)
 
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