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TOPIC TITLE: ROAD TO PREVENTION! New Study for Crohn's & Colitis
Created On 4/30/15 8:00 PM
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JCCSG
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Posts: 53
Joined: Mar 2011

4/30/15 8:00 PM
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Dear Member,

We are reaching out to you because we need your help!

As someone with Crohn's disease or Ulcerative Colitis, or as a caregiver of someone who has it, you surely know that sadly we currently don´t know what causes Inflammatory Bowel Disease (IBD), which makes it impossible to find a cure.

We do know that there are key genes that play an important role in deciding who will develop IBD, and that the Jewish Ashkenazi community is at particularly higher risk due to unique genes that the Doctors at Mount Sinai Hospital have discovered. We also know this is only a one part of the story.

Over the past few years the Doctors at Mount Sinai Hospital have successfully acquired new information telling us that the bacteria that lives inside our gut may be another important factor involved in causing IBD.

The studies suggest that there are certain types of bacteria that are protective against IBD and some that are playing a role in causing it.

We believe that these harmful bacterias are present before the inflammation even occurs in the intestine.

If we can successfully identify these bacteria, we can then find a way of altering them by diet or medication so that we can with Hashem's help, prevent them from causing IBD. The fastest way to get to the bottom of this would be to study the genetics and bacteria (gut flora) of people who are affected and unaffected by IBD within the same family (multiplex families).

The Doctors of Mount Sinai Hospital and the Jewish Crohn's and Colitis Support Group (JCCSG) believe that by working in this direction we can find a way to prevent the disease from ever happening in the first place.

Here is how you can help:

We at the ‘Jewish Crohn’s and Colitis Support Group’ (JCCSG) were honored to get invited to a meeting with our friends, the giants at Mount Sinai Hospital, Doctors of the Susan and Leonard Feinstein IBD Clinical Center. They have requested that we should partner with them, and join their new "Road to Prevention" program dedicated to studying life before IBD. After discussing this study with the Rabbi’s of our community, deeply evaluating the pros and cons of this decision, we came to the conclusion that it is best for our dear members that we join them, and yes! We have committed ourselves to do whatever we possibly can, to make this study a success!

For this program to be successful they/we will need to collect a small amount of blood, saliva, and stool from all family members including those with and without IBD. Together we can navigate the road to prevention and help our future generations to come.

Self-understood, participation is strictly confidential, and privacy protected!

JCCSG has partnered with Mount Sinai Hospital in organizing a series of events to raise awareness for the disease and to explain in detail what our research program is about.

Our first Symposium will be held on Sunday, May 10th, In Monsey, New York. Additional updates will follow.

We are looking forward to your cooperation and participation, Stay tuned!

We would be delighted to hear from you. The more participants the greater the potential impact of the research. Your participation is much appreciated.


-------------------------
Jewish Crohn's & Colitis Support Group
718-63-JCCSG (718-635-2274)
Info@JCCSG.org
www.JCCSG.org
Twitter: @JCCSG
 
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JCCSG
Supporter

Posts: 53
Joined: Mar 2011

5/4/15 5:31 PM
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Enlightening update regarding the upcoming “JCCSG Education Symposium and Support Event". As previously stated the “ROAD TO PREVENTION” event is in partnership and sponsored by Mount Sinai Hospital. Its goal is to raise awareness and give people an inside scoop of the research program.

This will be a "Ladies Only" education program. Renowned speakers will keep the participants on edge with the latest updates in research regarding Inflammatory Bowel disease (IBD). Patients, wives, parents and caregivers alike, of people suffering from Crohn's Disease and Ulcerative Colitis will be mesmerized.

We would like to take the opportunity to invite the non-effected family members of effected. It is highly regarded to have family members of IBD Sufferers participate in this study as a means of prevention. By navigating the "road to prevention" together we can save our future generations.

The event will take place on Sunday, May 10, 2015. At the new Vilchovitz Hall (former Yeshiva of Spring Valley, Boys School), 230 Maple Ave., Monsey, NY 10952.

    Welcome and Introduction: 7:15pm Sharp!

    Program Moderator:
    James F. Marion, MD,
    Professor of Practice of Medicine, Gastroenterology, ?Icahn School of Medicine, Mount Sinai Hospital

    Mount Sinai IBD center history: the house Dr. Crohn's built:
    Bruce E. Sands, MD,
    Chief, Henry D. Janowitz Division of Gastroenterology, ?Icahn School of Medicine, Mount Sinai Hospital

    The course of Crohn's disease and how it can behave:
    Asher A. Kornbluth, MD,
    Clinical Professor of Medicine, Gastroenterology, Mount Sinai Hospital
    Founder and annual course director of the Mount Sinai IBD Consultants Course

    Genetics of IBD in the Ashkenazi Jewish population:
    Inga Peter, PhD,
    Associate Professor, Department of Genetics and Genomic Sciences
    Member, The Charles Bronfman Institute for Personalized Medicine?, Icahn School of Medicine, Mount Sinai Hospital

    How diet and our environment affect the bacteria inside our bodies:
    Jeremiah Faith, PhD,
    Assistant Professor, Department of Genetics and Genomic Sciences
    Assistant Professor, Medicine, Clinical Immunology?, Icahn School of Medicine, Mount Sinai Hospital

    Why prevention of IBD is possible:
    Jean-Frédéric Colombel, MD,
    Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital

    How can you help?:
    Marla Dubinsky, MD,
    Chief Pediatric Gastroenterology and Hepatology,
    Co-director Susan and Leonard Feinstein IBD Center, Icahn School of Medicine, Mount Sinai Hospital

    Followed by a question and answer, Eleven doctors panel, with the additional following professors in the field:
    Keith Benkov, MD, Associate Professor Pediatrics, Gastroenterology, Icahn School of Medicine, Mount Sinai Hospital
    Judy H Cho, MD, Professor Medicine, Gastroenterology and Professor Genetics and Genomic Sciences
    Joana Torres, MD, Post-Doctoral Fellow Mount Sinai School of Medicine
    Jose Carlos Clemente, MD, Assistant Professor Genetics and Genomic Sciences

    Please call us at 845-670-4522 or email us at RoadToPRevention@JCCSG.org with your questions in advance as we will only be able to accept minimal questions at the event.


We're working on providing transportation from Kiryas Yoel - Monroe, and New Square. Please call 845-670-4522 or Email us to RSVP.

Help us spread the word. Should you know someone who might benefit and is not on our mailing list forward this.

For any other comments and suggestions, please feel free to contact us anytime by phone at our designated number 845-670-4522 or Email.

We would be delighted to hear from you. Your participation is much appreciated!


-------------------------
Jewish Crohn's & Colitis Support Group
718-63-JCCSG (718-635-2274)
Info@JCCSG.org
www.JCCSG.org
Twitter: @JCCSG

Edited: 5/4/15 at 5:33 PM by JCCSG
 
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