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TOPIC TITLE: Starting the list
Created On 1/19/05 12:28 AM
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BRBS
Junior Supporter

Posts: 8
Joined: Jan 2005

1/19/05 12:28 AM
User is offline

I guess I'll post first. I'm 25 and live in LA and I've only met one other person with Gaucher's. Looking forward to meeting others and hearing your stories.

Rocheyl


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Besides that Mrs. Lincoln how was the play?
 
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chaimk111
Junior Supporter

Posts: 1
Joined: Mar 2005

3/2/05 9:21 PM
User is offline

can you be contacted in any other way like by e-mail or phone?

i know someone looking for info on this disease too

tezku lamitsvas


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chaimkellner
 
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BRBS
Junior Supporter

Posts: 8
Joined: Jan 2005

3/20/05 12:34 PM
User is offline

sure my email is rocheyl@yahoo.com



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Besides that Mrs. Lincoln how was the play?
 
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hashemknows
Junior Supporter

Posts: 14
Joined: Dec 2006

12/3/06 2:39 PM
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hi sorry to ask- whats gauchers?


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orahc
 
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MorahRachel
Junior Supporter

Posts: 3
Joined: Dec 2006

12/18/06 10:39 PM
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I am 28 and married with 2 children. I found out I have Gauchers through routine genetic testing before I got married. I have been asymptomatic until now- when I find myself extremely tired. My Doctor thinks its time to begin ERT. I wonder if there is anyone out there in a similar situation who wants to talk about any of this.
 
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BRBS
Junior Supporter

Posts: 8
Joined: Jan 2005

12/31/06 2:07 AM
User is offline

yes, yes... I would love to talk to you about this. Feel free to email me off board its rocheyl@gmail.com or rocheyl@yahoo.com. I have alot of information for you and would love to talk to you


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Besides that Mrs. Lincoln how was the play?
 
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