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TOPIC TITLE: to pump or not to pump?
Created On 1/5/05 3:20 PM
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sweetnlow
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1/5/05 3:20 PM
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hi. i was diagnosed w/ type-1 diabetes about 2 years ago when i was 19. everything is B"H fine and under control but i was thinking about using an insulin pump as opposed to the needles, but im having doubts. i would love to hear what others have to say about the pump or even just to talk to fellow type-1ers...
 
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RachemNu
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1/5/05 4:08 PM
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There is an organization called Reyim Mesikim they are very helpful 845-352-7532


Edited: 1/20/05 at 9:50 AM by FrumSupport Moderator
 
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lookinforhelp
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1/5/05 6:22 PM
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Hey sweetnlow,
My best friend has had 'type 1 diabetes' for over 10 years now. When I first met her way back, she was constanly pricking herself, checking her sugar level and either giving herself injections or eating chocolate. Although it was a way of life for her, it was bothersome to always have to do this, and her fingertips are now black from all the pricks! However, after she got married and became pregnant, the doctor recommended that she switch to a pump, and she did. B"H, she claims that it makes her life much easier, and now even after the baby she continues to use the pump. I asked her if she would recommend it over needles- and she said definetely!!
 
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sweetnlow
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1/5/05 7:11 PM
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hey thanks so much for answering...
so far ive only heard great things about the pump. i guess what im worried about is how to wear it. im very open about the fact that i am diabetic, but to have something that obvious attached to me all the time makes me a little uncomfotable, especially being in the dating scene.
everyone i have spoken to about wearing the pump is either a guy(its much easier to be discrete for guys) or married. i do plan on getting the pump eventually, im just debating whether or not i should wait until im a little more settled down (i.e. married)...
 
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lookinforhelp
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1/6/05 5:14 PM
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I'm talking to my friend as I write... (she's doesn't have internet so she can't correspond with you directly),
"She (refering to you, sweetnlow) might be worried that people might notice she's wearing a pump, but really you cannot see it! It's so much smaller than anyone would expect and unless someone hugs you, they will not notice it."

 
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gotsugar
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1/7/05 1:38 AM
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I am a type 1 diabetic for four years and I have heard rave reviews about the pump however the one downside I have heard is the cost. Without insurance the pump can cost nearly $5000 and monthly upkeep is quite pricey.
I really hope you are able to work this all out.
Be in touch,
Gotsugar
 
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lookinforhelp
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1/11/05 2:50 PM
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Hi Sweetnlow,
Have you decided yet whether 'to pump or not to pump?'
Also, my friend said that if you had an more questions about the pump and people noticing it, then you are more than welcome to call her. Just ask me and I'll send you her number.
 
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sweetnlow
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1/11/05 9:50 PM
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hey thanks so much for all of your help... i think im going to hold out on the pump for a little bit but ill will for sure be "pumping" in the near future... thanks again!!
 
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sss58
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1/15/05 3:31 PM
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hey, I'm a type I diabetic for the last 13 year. I got the pump about five years ago and think it was the best decision I ever made. in the beginning it is hard to get used to, but it is great. it gives me flexibility and control I never thought i would have. my a1c levels are amazing and I can eat or not eat much more to what i want than ever before. the most important reason for a girl to consider a pump is for having children. it is very important to avoid complications and one of the best ways to do this is by keeping sugar levels down and as close to normal as possible. If you have issues of where to wear it, there are lots of places, no one will ever notice it! good luck! any questions please respond!
 
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cbanana2887
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1/16/05 4:28 PM
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Hi,
I was diagnosed with diabetes about 7.5 years ago when I was 10. I went on the pump about 2 years ago and I love it. Something that I really appreciate about the pump is how it lets me live a normal life. I don't feel like I am tied to the clock anymore, in terms of when to eat, and I feel like I am actually in control of my life. Something else that I love about my pump is that it lets me fast on Yom Kippur and Tisha beAv. That might not sound so exciting to most people, but to me, fasting on those days really made me feel like I was part of the communittee and not just someone on the outside looking in. Anyway, I hope that this was helpful and if you have any questions, please ask me.

CRL
 
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RabbiMeisels
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1/20/05 6:19 AM
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Thanks for recommending our organization “Rayim Metukim” - “Jewish Friends With Diabetes”. But I was wondering who got across my cell phone number which should normally not by publicized. The number for our office is 845-352-7532.

To pump or not shouldn’t even be a question. The only question should be which pump..


-------------------------
Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
 
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sonofsam1981
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1/20/05 7:07 AM
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hey sweetnlow- I'm not sure what to tell u, the pump is the best thing I ever did, but then again I'm a guy- it's much easier to hide the pump, But let me tell you a story about hiding the pump and dating. The truth is that people that are supposed to know will find out at the time that Hashem wants them to know whether you like it or not (at least that is what a true believer believes). I'm B"H married and have a little daughter, I'm 23+. I was diagnosed at the prime of my life at 20 and went on the pump about 4 months later. I bought a pump holster at a store called diabetes mall online that goes on the leg- on the second date with my lovley wife we had to run to the car and the pump fell down and she was able to see something was wrong if she took notice. I thought to myself the concept that got me through my new life till then : all who will know will know when Hashem wants them to and I thought if now is the time then so be it. My wife did not find out then but she could've so you see it is not in your hands. Go to diabetesmall.com (I think) and check out all the discrete places you can put the pump and maybe then you'll make the best decision for you . By the way my Dr. is a female on the pump and I was never able to find it even after i found out she was a pumper.


-------------------------
IT'S ALL K'MO CHATAN
 
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jewishdiabetes
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1/20/05 10:03 AM
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BS"D
Since our first pumper, years ago, hundreds have gone on the pump. We have pumpers both male and female ranging in ages from 3 to 79. In all this time only one person chose to go off. B"H Hashem has provided something that gets us as close to the real thing as possible. Utilize the chesed. We have dozens of young frum couples that are building beautiful homes and living full and normal lives
Nechama
JDA (Jewish Diabetes Association)
718-578-4180


-------------------------
Nechama Cohen
JDA (Jewish Diabetes Association)
718-303-5955
Israel cell:052-763-1500
 
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splenda
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Hi, I'm a type 1 diabetic diagnosed in 2001. I was on lantus and was doing pretty well but I switched to the pump when i was still single about a yr. and a half ago. I switched mostly because I could never exercise. whenever i got on the treadmill my suger would drop - even when i ate a huge snack first. then after i finished exercising my sugar would soar from all the sugar i ate while excersizing.. it was a big pain in the neck, big enough for me to get on the pump.. I have mixed feelings about the pump. As far as hiding it, that's really not a big deal. like that other girl said, unless someone hugs you, they'll never know! for me though, i used to be very careful about what i ate when i was on shots because you don't want to keep on pulling out a shot when you're somewhere and you keep on eating different things. With the pump, its really easy to give yourself some extra medication whenever you pop things into you're mouth. It makes you feel like you can really eat whatever you want and just cover it with a bolus but at the end of the day a diabetic is a diabetic and you can't really have that flexibility. Also, the pump has malfunction on me here or there, which can be very upsetting. when i was pregnant my pump wasn't working properly and it took me 3 dys. to realize that it was the pump and not me. then i had to send it back to the co. and wait for a new one. that was very frustrating, as well as when i insert the tubing and its not in properly so it doesn't deliver the medication. that can sometimes take a few hours to catch on to and also leave you with crazy numbers. After all my complaining... i do think that you should try the pump. Firstly, you mentioned that you are single. i was dating my husband while first getting started on the pump and was nervous to tell him that i would be wearing this machine all the time. he was totally fine with it. i think he actually felt more comfortable with it than the thought of his wife pulling out needles all day. he also liked that i was in on the latest in diabetes care. it made him feel like i was on top of whatever was coming out to best manage diabetes. If you're active , it definitely beats shots by far. you can excersize for a long time and never hit a low. you can wake up late and eat for the first time at noon. also, it is true that everyone agrees that when you're pregnant you should be on a pump. why wait to figure it out then? get on it now so that by the time you need to be on it you have it all figured out. Good luck.


-------------------------
splenda
 
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splenda
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This is for Nechama Cohen. I remember hearing that you used to have a support group for young women. I was wondering if you still run such a group because i am a 25 yr. old female diabetic looking for a group...


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splenda
 
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justme
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3/3/05 12:13 AM
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Hi, I know a million pple sent you the same email about why you should try the pump......but maybe one more will help.......I was also nervous about hiding the pump, it's kept me from getting it earlier, but it's really not that hard to find a place to put it so that no one would see it.......it can be a little annoying at first but it's well worth it..........i only tried it after i was married and wanted to get pregnant and i promised myself that i would switch to shots as soon as i a gave birth and i cant believe now that i ever thought that, because once you get used to it, it's well worth it. Good luck with whatever decision you make.......
 
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tzally1
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3/4/05 12:01 PM
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Hi,

In my humble opinion, there is absolutely no reason not to tell your date that you are a diabetic, for a number of reasons:

1) If the person you'r dating is your "Bashert", whether you'r a diabetic or not will not make a difference.

2) It is proper to be honest, and ESPECIALY when you are dating.

3) 99% will not turn you down just because you are a diabetic.

4) You will have to eventually tell them anyway.

P.S. If your parent's are making the shidduch, it might even be proper to give over this information before you see each other.
 
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RabbiMeisels
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The guidance we got from our Rabbonim, that one should only tell the other party about the diabetes after they got to know each other well and things are getting serious, in order for them to know the person before they hear about the diabetes. This would usually result in sharing it by the third date. Those who meet only once need to plan this carefully ahead, for more details anyone can call us and we will guide along.

The most important thing to remember is to present it in a very positive manner, so the other isn't scared about the diabetes.

Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
www.KosherLowCarb.org


-------------------------
Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
 
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splenda
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3/5/05 9:40 PM
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I got diabetes when i was in shidduchim and I spoke to a Posek about how to go about telling boys and was told that I should not tell my date about the diabetes until he expressed interest in me and I interest in him. I did not tell my husband about it until we had dated several times and was nervous that he would be upset about the fact that he did not know until that point but he was not angry at all. When i told him, i first told him that I was telling him at this point because I was under the guidance of a Rav who had instructed me. He actually felt that it was real hashgachah that I hadn't told him earlier because he may have very well have dismissed the shidduch and only after a few dates did he know for sure that we were a real match!


-------------------------
splenda
 
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debbie
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I got diabetes with eighteen and got married boruch Hashem with nineteen. I told my husband only after the second date and he was happy that he got to know me first otherwise he probably would have never considered the shidduch. I would just like to add I have boruch Hashem two little girls and I was never on a pump. I never found it necessary. Does the pump also prevent lows


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debbie
 
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RabbiMeisels
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YES! Pump users experience fewer episodes of severe hypoglycemia, as reported in a study in Diabetes Care (22:1779-1784, 1999). My own experience and the experience of the hundreds of pumpers I'm in contact with will also testify to that conclusion.


-------------------------
Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
 
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debbie
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I get my lows just from working hard in the household, even if i ate before without giving myself a shot. Can the pump help me there aswell?


-------------------------
debbie
 
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splenda
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the pump helps avoid lows. I used to be on shots and had great A1-c's and i really switched to the pump because whenever I was very active, i would always go low even with a snack. the thing with the pump is that it gives you small increments of fast acting insulin continuously so you can lower it, or even turn it off if you anticipate being very active. i still get lows often but that is more from incorrectly calculating a bolus to cover my carbs or to treat a high bs, but not really from activity. I would like to ask you how you found pregnancy on shots. I had a baby on the pump and recently i have been having issues with my pump (not low's, more like trouble inserting it). I've been very frustrated and have contemplated going back to shots but all my dr's tell me that if i were to get pregnant again i would need to be on the pump. were you able to keep really tight control during your pregancy on shots? was your dr. ok with it? if you don't mind me asking , who was your ob/gyn?


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splenda
 
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debbie
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During my first pregnancy I had a very hard time controlling my sugar, since I threw up for practically nine month. I used to give shots and then I got lows. The second pregnancy was fine until the third trimester, there I went a few times too high up with my sugar. But since my A1/c never went above the limit they told me not to go on a pump during the pregnancy. My babies were very big, almost 9 pounds. Was your baby also so big About the doctor I dont think it would help you if I gave the name of my doctor since I live in Europe.


-------------------------
debbie
 
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splenda
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4/10/05 9:43 PM
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my baby was 7"9 but he was born at 36 weeks. they said had he been full term he would have been close to 10 lbs. I had a miserable pregnancy even on the pump. i had preterm labor and developed high blood pressure. my sugars also jumped around but even on a pump i found them impossible to control tightly enough because the pregnancy was constantly causing a change in the way the medication affected my body so i had to treat myself through trial and error. what kind on A1-C's did they want from you.


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splenda
 
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debbie
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They wanted me to have , I dont know them in american numbers, in european numbers under 7.2 . My highest a1 c was only5.9.
A different question, now after my pregnancy I started having so many lows that I am really going nuts. I wonder if it is worth going on the pump just for that reason, even if my A1c s are okay. Isnt the pump a big bother everywhere and in everything you do-?


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debbie
 
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BBJ
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4/15/05 1:42 AM
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As a non Diabetic I can tell you my experiance with pple whjo have pums. One girl I met was young about 10 and I saw soem tything that looked like a cell phone on her hip. I thought kids these days hget cellphones so young. Then i noticed a line on her shirt. Due to my medical backgroud I thought Diabetic pump. If she had not been wearing such a close fitting shirt, she was young not a tznius issue. I may have only though cell phone. You could be catrrtying a cell or a beeper. The pump is about the same size and thats a normal thing to have. Also if you wear two layers it probablly will not be noticeable. You really should care more about you and your health than siduchim. Easy for me to say? Not really as I also have serious medical problems that are not apperent. The other person I know who has the pump wears it blatenly ou. It could also be a pedometer many people wear them these days. Ok, so they guy might think you are a little nuerotic but i doubt it. Also most guys do not notice this kid of stuff. Lots of good wishes Bayla
 
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debbie
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i am married and i am not worried about wearing the pump, it is just that i was wondering if putting up with something on zour body the whole time is not disturbing. let s say for swimming for example


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debbie
 
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BBJ
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4/15/05 3:16 PM
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what about mikeveh with pump is it removable?
 
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Becky101
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It is not a problem to go to the mikvah-you just remove the whole pump and right after you finish the mikvah you put it back on ( you have to change the tubing but you anyways need to do that every 2-3 days). Regarding swimming and showering you don't actually remove the whole pump (as you would by the mikvah) the pump has a plastic tubing coming out of it and you can disconnect the tubing of the pump (the pump is removed but the tubing stays on) and after the shower/swimming just connect it back together.

Becky
 
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Gkreiner
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The pump is amazing. It changed my life! No more worrying about when was the last time I bolused, no more needles, sleeping in not a problem, traveling is a piece of cake, you can be creative with your dosages and how you give them, when you are sick or want to adjust for excercise it is so easy. It is also the best way to keep tight /good control of your diabetes. If you have further questions dont hesitate to drop me a note. Once you become a pumper, I highly doubt youll ever want to go back to needles.

Kol Tov,
Gideon
 
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IDDM11
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ok, I can actually help you here. I was diagnosed with Diabetes at age 11, and got the pump when I was in ninth or tenth grade, and now I'm 23. I went through the whole (shidduch) dating scene. At first I was very open about the Diabetes, but I found that I was getting A LOT of nos because of it. I then got a psak that I didn't have to say until later on. I also went through different stages and different places of hiding my pump, especially on dates. I find the best place now where I hide it - and no one (who doesn't need to) even knows that I am a Diabetic - is in my stockings, tucked into my underwear. I take off the clip, so that it's really thin, and my stockings hold it tightly against my skin. It's basically impossible to see it these days.

Let me know if I can help with anything else!
 
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IDDM11
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I have a question to all of those female Diabetics who use the pump and have worn it through a pregnancy - While you were pregnant where did you wear the pump? I usually conceal it, but while I was big pregnant, I found it so much harder. And it didn't stay on the waistband of the maternity skirts since they were so stretchy! Please let me know, so that I can know for further pregnancies, IY"H.

Thank You!
 
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IDDM11
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Tzally,

This message is in response to your post about saying you are a Diabetic or not while dating BEFORE you go out.

I got A LOT of nos because of the Diabetes. Also, one thing you should remember is that you are a guy, and the reality is that when it comes to shidduchim, it's a different world. My psak not to say until later on was from Rav Chaim Kaniefsky.

It is true that your bashert will be OK with the Diabetes but how do you know if your bashert is meant to find out before or on the fifth date?

In regards to being honest - I don't think Rav Chaim would give a psak like this if he felt I wasn't being 'honest'.

Thank You
 
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sweetnlow
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2/27/06 11:54 AM
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hi everyone...
as you may or may not recall, i started this discussion with the question "to pump or not to pump." and now, over a year later, im finally going on the pump. i just wanted to thank all of you for your responses, suggestions and advice. speak to you soon!
 
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motherof2girls
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does anyone know if you can go on a pump in england
is there anyone here from england?? and how much it costs
do you have to pay for the insulin
im also worried about the pump showing.iv seen one but it was a man wearing it and it just looked like a bleeper or mobile phone on a belt. i dont ever wear belts. i usually wear elasticated waists too! also does it hurt to put the tube in . and the thought of having a tube in my stomoch all time dosnt appeal to me very much
and when you sleep dosnt it get in your way?? so how do you know how much to inject. does it work like lantus so you have a constant flow of insulin do you need less insulin all the time??
 
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RabbiMeisels
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Most people will reduce their total daily insulin a bit when going on the pump.


Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org


-------------------------
Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
 
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DovidUK
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8/1/06 8:55 AM
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Re: Pumps in England - if you mean UK, I have recently started on a pump and yes they are available. You can email me if you need specific info.
 
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RabbiMeisels
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Jewish "Friends With Diabetes International" is currently working on organizing a support group for people with diabetes in London. If interested to join or to help please email me privately at RabbiMeisels@FriendsWithDiabetes.org

Rabbi Hirsch Meisels
Jewish Friends With Diabetes International
www.FriendsWithDiabetes.org


-------------------------
Rabbi Hirsch Meisels
Jewish Friends With Diabetes
www.FriendsWithDiabetes.org
 
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