Login
Questions or Comments!
admin@frumsupport.com

Get FrumSupport News! Join our mailing list.
Email:


Search

Navigation:

 Tehilim List  < Refresh >
TOPIC TITLE: Keraticonis
Created On 2/11/05 1:15 PM
Topic View:

View thread in raw text format


draveman
Junior Supporter

Posts: 1
Joined: Feb 2005

2/11/05 1:15 PM
User is offline

I suffer from this disease, becoming blind 5 years ago. i have had 2 corneal transplants that have rejected in my right eye. looking for people to talk to concerning this disease.


-------------------------
Basically happy Ba'al Bitachon. I am blind for 5 years suffering from a degenerative disease called keraticonus.
 
Reply
   
Quote
   
Top
   
Bottom
     



Tzfathealing
Junior Supporter

Posts: 1
Joined: Feb 2005

2/17/05 1:52 PM
User is offline

Bs''d
In one of my past Western Medicine Careers I worked at Bascom Palmer Eye Institute in Miami, Florida. We saw many patients such as you. We were able to fit the patients with contact lenses so they could see. I wonder if you have ever heard of Bascom Palmer? Blessings to you for a Refuah Shlema,Tzfathealing


-------------------------
My exp. has been in working in trad. medicine and complimentart med. for over 30 yrs. They can Ask Dr. Tikva.
 
Reply
   
Quote
   
Top
   
Bottom
     



chanieF
Senior Supporter

Posts: 360
Joined: Feb 2005

2/28/05 10:45 PM
User is offline

Quote

Originally posted by: draveman
I suffer from this disease, becoming blind 5 years ago. i have had 2 corneal transplants that have rejected in my right eye. looking for people to talk to concerning this disease.


do you know why you suffered from rejection??? as this is not common with corneal transplants, it may be to your benefit to find out why, as perhaps this will lead you to some answers.
an RGP can help improve vision in those with keratoconus in general, but will not help in any way so far as a rejection is concerned.
get a 2nd and 3rd opinoin etc. and from top corneal specialists.

if you learn that there is not much that can be done (though i hope that this is not the case), then consider an evaluation by a low vision specialist to maximize what you can see with the vision that you do have.

 
Reply
   
Quote
   
Top
   
Bottom
     



eye-fly
Junior Supporter

Posts: 4
Joined: Nov 2005

11/24/05 1:51 PM
User is offline

Are you still there. I just joined the group.
When was your last evaluation by a cornea specialist?
If you sugffered a graft rejection once, it doesnt necessaqrily mean trhat it will happen again. Was it treated in a timely fashion? Graft rejections must be treated immediately and intensively. If that wasn't the case, another graft might be possible, with closer monitoring.


-------------------------
MJL-MD
 
Reply
   
Quote
   
Top
   
Bottom
     



molly P.
Supporter

Posts: 24
Joined: Jan 2006

1/12/06 10:15 PM
User is offline

My husband is 26 and has Keratconus (this is how Dr. Feinstein's secratary spelled it for me). He can see but not very well. He went to his optamalogist-Dr. Feinstein who said he doesn't have the right equipment but told him to go to a cornea specialist. He recommended The New York Eye and Ear since they take medicaid,Americhoice. My husband went down there and the waiting room was very full and he would've had a wait just to register his name, let alone to see a doctor so he just left. I called up Echo and asked them if they can recommend someone else who takes insurance. They sent me to Dr. George Hyman at the Brooklyn Eye Institute. Dr. Hyman confirmed that he has Keratconus, and said he needs special lenses. He had the right equipment to photograph a map of his eyes but said he himself doesn't fit the lenses. I found out 3 names of doctors who fit Keratconus lenses. 1-We decided to go with this one-Dr. Feinstein 2-Clearview Optician (also an eyeglasses store) 3-I think this is the name-Vision Associates. Let me just tell you, insurance doesn't cover for it and it is a very expensive lense. Clearview priced us $600,Vision A.-$300, Dr. Feinstein-$400-$500,depends...
You can try to get it covered by Americhoice,Medicaid by having the doctor send to them(the insurance) a letter that the lenses is for medical reasons and not cosmetic. Once you get approved you can try to get a doctor to accept it. If anyone has success with this please let me know. As of now we are not bothering. If anyone needs phone numbers-you can ask me and I'll see if I have it

 
Reply
   
Quote
   
Top
   
Bottom
     



chanieF
Senior Supporter

Posts: 360
Joined: Feb 2005

1/14/06 11:07 PM
User is offline

molly:
the drs at the University Optometric Center in Manhattan take medicaid. i would imagine that they will know how to work things out for the contact lens too. i highly recommend giving them a call.
 
Reply
   
Quote
   
Top
   
Bottom
     

View thread in raw text format
FORUMS > Ophthalmology > Corneal Diseases < Refresh >

Navigation:

The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.

If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.