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TOPIC TITLE: safta with macular
Created On 1/18/06 5:15 PM
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Torsalicious613
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1/18/06 5:15 PM
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my grandmother has macular degeneration. she's 85, kenaina hora, and relatively healthy, but i am concerned for her, because eventually she will lose her vision and will only be able to see periferally. is it genetic?

atara


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what the hecka is a signiature?
 
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elish3va
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1/24/06 12:15 PM
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i don't know if it's genetic or not.. but my grandfather also has it.. both his mother and her mother had this before they passed on (of entirely different things).... but if the condition is not genetic then what i just told you is meaningless... anyways, i'll try and find out of its genetic and get back to you asap bli neder...
 
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clubk
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2/19/06 11:04 AM
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B"H
There are several new developments in this field that can stabilize this condition and improve the outcome. Pursue these advances.
Clubk
 
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Packeteers
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2/24/06 10:08 AM
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I'm sorry clubk, but it's simply not right to give people here false hope.

I have a 75 year old Uncle with advanced wet macular degeneration,
I also follow and invest in many pharmaceutical companies and can report;

All MAC wet or dry solutions are in early FDA trail stages and are many years off from being marketable.
All MAC wet or dry solutions use RNAi or other new technologies the FDA will NOT rush to market.
None of the early trials have show more than 50% efficacy at arresting MAC
None of the early trials have shown ANYTHING that Reverses the damage caused by MAC.

The good news is MANY companies recognize the exploding market for MAC solutions
and are pouring Billions of research dollars into finding arresting and reversal solutions.

The best course of action is early detection so your doctor can help you SLOW the progression of MAC.

Useful resources for up to date treatment information;

http://www.amd.org/site/PageServer?pagename=Current_Treatments

http://www.amdalliance.org/amd-info/personal/treatments/treatments.asp


Edited: 2/24/06 at 2:59 PM by Packeteers
 
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brayehu
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4/10/06 7:38 AM
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I had two doctors diagnose me (I am 67.6 yrs old) me three months ago with the above illness and the only advise I received is to take Lutein which I immediately started. Thank God I have no problems with sight only feel tired eyes and that could be emotional after having been giving this sad news. I have to say Thank God because I went with my sick sister to the doctor and because of her I decided to have my own eyes examined and that's how I got these news. I believe in miracles and so I will pray for one to reverse the deterioration of my macula. I will eat more green vegetables and try to live healthy, which means keeping my computer time down to the minimum and reading less and be more out in the fresh air.Happy Passover


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Bracha Frankel
 
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Packeteers
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4/10/06 10:39 AM
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brayehu, AMD progression has nothing to do with actual eye usage (reading and computer use), as your eye's blood vessels are effected similar to how the arteries in your heart can harden due to your lifestyle (diet exercise smoking stress). Even sunglass wearing to avoid UV has never been clinically proven to effect AMD yet all Doctors will tell you to do so. Many people diagnosed with AMD also get a cardiovascular checkup since one problem is often related to another. Don't be afraid to pursue this, as the more you know now, the better you can prevent problems later.

Get a referral to a dietitian/nutritionist who actually goes with you on a grocery shopping trip to help you learn to read food labels and identify foods low in saturated fat, and higher in anti-oxidants (beta carotene and the mixed carotenoids that are precursors of vitamin A). There is little conclusive evidence that Vitamin C and E, selenium, or zinc will help, but you should still take the RDA of those in food or from supplements. Remember supplements only stay in your blood stream for 6-8 hours, so it's best to take small doses 2-3 times a day, then to mega-dose and overwork your liver.

If you find it hard to increase anti-oxidants in your diet, you may want to try;
http://www.teavigo.com/en/antioxidant_properties/
which is now available in America in vegi-capsule form, and in Europe as a food additive.

As for Vitamin E, C and ß-carotene, no need to take more than the total RDA supplement throughout the day, especially if you plan on increasing your consumption of fruits and veggies. I hope you will take my advice about seeing a nutritionist to actually LEARN what foods to buy and even how to best prepare them so they don't lose their nutritional properties.

I am NOT a medical professional, so please get all this confirmed by those you trust, and know that AMD progression takes many years, and you can easily adjust without adverse effect to your lifestyle. My 75yo Uncle in 4 years since diagnosis, and he only recently stopped driving. He reads and writes, but prefers enjoying books on tape since reading a novel can be too much of a chore. I got his computer a keyboard with large letters, and a bigger computer screen that shows white text on a black background so he can surf the web for Israel news, D'var Torah, and even check his email and online bank accounts daily.

He sometimes has difficulty recognizing faces, but is pretty good humored about it. He is seeing a Geriatric Counselor that helps him keep a constructive attitude and "embrace" the aging process. This is something else you may want to consider further down the road if the progression of AMD begins to depress you emotionally as you may find it difficult to confide with friends and family about all this.

Here is one of many companies working on promising new drugs to arrest the progression of AMD;
http://www.sirna.com/sirnaproduct/amd.html
Their Trail-II starts this fall, so we are still 4 years away from any useful new drug hitting the market.
Disclosure: I am a stockholder in this company symbol RNAI.



Edited: 4/10/06 at 11:02 AM by Packeteers
 
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chanieF
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4/10/06 11:56 AM
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-note that if anyone smokes then beta-carotene increases the chances of lung cancer significantly.
-ocuvite or preservision are the oTC forms of the anti-oxidants used in the AREDs study for the NEI. and lutein was later found to be helpful too.
-but the study was done for various stages of armd and not necasarily found to be beneficial for all stages of it. however, they weren't run for long enough to determine if they are helpful preventatively or not. note that some medications for other things have recently been linked to armd as well. and relatively recently there have been a few drugs that have been fda approved for the wet form, but it wil be some time until they figure out how to optimaly combine it with the treatments that were already out so as to get the best results.
-for those with vision affected by it, low vision is a speciality that is excellent, where drs work with special magnifiers and glasses to make the most of the vision that an individual does have.and note that not only should one follow with a retinal specialist in many cases, but there are actually retinal specialists that specialize in armd!
 
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