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freespirited1
Supporter

Posts: 39
Joined: Oct 2009
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11/8/09 1:04 PM
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How did the people here get diagnosed? I'm sixteen, so no doctors feel like listening (as if I'd make this stuff up!) I have muscle weakness that's so bad that my legs just feel tired all the time (which is very uncomfortable, and enough to make me afraid to go to sleep at night, for fear that I won't be able to move my legs in the morning). My left shoulder is almost completely numb, I can't tell imediately whether something is hot or cold-even if it's in the extremes of the temperatures, I get muscle spasms, tightness (which mostly comes from cold weather), a pain that feels like it's coming from deep within my bones. I have joint stiffness and pain if I keep them in one position for too long, I have memory problems-I literally can't remember what I have for breakfast and I have the same thing every day. I can hardly carry a conversation some days because I forget what the person was talking about-in the half of a second before I start talking! There's more, but I can't remember it right now.
I'm scared out of my mind because no one wants to listen to me and I know that something's wrong. It's not the first time that I had something wrong with me and the doctors wouldn't listen-and I turned out to be right! I haven't been wrong since I was eight (although, that time, the doctor actually listened to me the first time around).
I know that this post was a little long, but it's probab;y because I'm scared. I'm having an EMG a week from tomorrow, and I'm getting a brain MRI soon, too. But I'm scared that the tests will show something horrible (worse than MS) or nothing, which would be typical of me. Which tests were essential in your diagnoses? Which symptoms were the ones that alarmed the doctors enough to test? (I've found that, quite often, the symptoms that bother me the most aren't the ones that lead to the diagnosis because the doctors don't consider them urgent, just annoying.)
I really appreciate any help or suggestions. I'm so scared about what could happen! I thinmk I'm more scared now than I was when my mother was diagnosed with cancer (she died last April-my symptoms didn't start until June, and I don't think this is stress-related). Can anyone help me?
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Smile; it's what your mouth is there for --- I have the short-term memory of a carrot --- The early bird catches the worm, but the second mouse gets the cheese in the trap
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