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TOPIC TITLE: Stigma of genetic disease in the frum community
Created On 7/30/07 2:54 AM
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BRBS
Junior Supporter

Posts: 8
Joined: Jan 2005

7/30/07 2:54 AM
User is offline

I am putting together a presentation on living with a genetic disease in the orthodox community. Specifically the stigma that comes with having a genetic disease. I would appreciate feedback from anyone living with a genetic disease or knows of anyone living with a genetic disease.

Have you felt support of the frum community?

Do you feel like you need to hide your condition because you are afraid you or your children will not get good shidduchim, or any other reason you don't feel you can share your "condition"?

Do you have a Rav and mentor you feel comfortable you can confide in and can answer your questions?

Should couples be tested for both fatal and non-fatal and treatable disease before they are married?


Thanks for your help. Please feel free to contact me at rocheyl@familysimon with any questions or comments.
Rocheyl Simon


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