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TOPIC TITLE: chromosome deletion syndrome
Created On 5/7/06 1:41 PM
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sholommordechai
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Posts: 2
Joined: May 2006

5/7/06 1:41 PM
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hi our son is five weeks old and has 1p36.3 deletion. if anybody can give us some information or insight about what we're dealing with , and what we can expect and hope for, it would be very helpful and greatly appreciated. thanks and kol tuv
 
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bmr
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Posts: 32
Joined: Dec 2004

5/8/06 9:54 AM
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If you haven't already searched there for info, try www.chromodisorder.org (Chromosome Deletion Outreach).
Hatzlacha rabah
 
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sholommordechai
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Posts: 2
Joined: May 2006

5/8/06 8:44 PM
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thanks i tried that site. there wasn't much there about this particular deletion, although i'm still waiting for responses to emails i sent to parents of children with it...
 
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b4utrade
Junior Supporter

Posts: 1
Joined: Jan 2009

1/21/09 6:11 PM
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Hi,
My son was just diagnosed with chromosome deletion syndrome, is it possible for me to contact you to hear about your experience with your child over the last 2 years?
 
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