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TOPIC TITLE: Adults with CF?
Created On 12/6/05 12:35 AM
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Starfall99
Junior Supporter

Posts: 1
Joined: Sep 2005

12/6/05 12:35 AM
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Hey there, just wondering if there are any other adults with CF on here. I'm a 26 year old woman with CF, and B"H am doing great for an adult CF patient! It gets kinda lonely though not knowing any other frum people with CF (the one person I knew unfortunately passed away last January...). It's nice having someone to talk to who really understands day to day CF life, and though sometimes I hang out on a general CF message board there are things even they can't understand -- like the frustration of dealing with CF and SHIDDUCHIM! So, anyone else out there want a CF "pen pal?"
 
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downsyndrome
Supporter

Posts: 71
Joined: Nov 2004

12/6/05 8:05 PM
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Hey! I can't believe what I'm reading! Right now in front of me is the Cystic Fibrosis newsletter that was started by a frum veibele about a year and a half ago. No, I don't have CF, but this woman sends it to me because she consulted with me about publishing/editing (I publish a magazine on Down syndrome). You can e-mail her/them at <CFFamilyTimes@aol.com>; please write that I sent you there. In that newsletter you will meet a host of people with CF, lots of them adults and all of them frum. Good luck and have a refuah shleimah.
Sarah Sander
 
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