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TOPIC TITLE: Recurring viruses
Created On 11/4/04 7:13 PM
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GamZuLetovah
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11/4/04 7:13 PM
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Hi Everybody,

This forum seems to still be new. But I'm sure that soon enough someone will see this message. BTW I think this forum is great idea.

My downs son (14 months) keeps on getting recurring viruses in his mouth for last couple of weeks. I would appreciate to hear if anyone else is having similar experiences. Can this have to do with the fact that he is down, or this is something that could just as well happen to any child?

Thanks,
GamZuLetovah


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The sun is always shining! There are just times we don't see it.
 
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downsyndrome
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11/9/04 5:38 PM
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Hello GamZuLetovah:
It just occurred to me that perhaps you should discuss the mouth sores with your baby's cardiologist. I'm sure you know that any open 'boo-boo's' in the mouth can be dangerous for the heart. That is precisely why heart patients must take anti-biotics when they have dental work done. I think you should run your baby's frequent oral sores by your cardiologist.
Hatzlacha,
Sarah
 
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GamZuLetovah
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11/10/04 1:25 PM
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Thank you so much,
This sounds like a good idea.


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bmr
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12/20/04 9:26 PM
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Just heard about this website...and saw your post.
My 6.11 year old daughter (sibling of my son with downs, incidentally) suffered from recurring mouth sores as an infant and still tends toward viral type bumps on her tongue or sores on her gums. As an infant, when they were much more severe, strep was often considered and ruled out. Herpes was ruled out because they never responded to acyclovir or a similar medication. They looked like white sores on her gums, but not quite like cold sores. A couple of years ago, a sibling of mine told me that she's suffered from similar viral stuff in her mouth. Real painful. She shared her best remedy, and it's really helped. My pediatrician, too, said she hears the following can help: L-LYSEINE. It's a vitamin you can find at the drug store. Now, at my daughter's 1st complaint of something hurting in her mouth, she swallows an l-lyseine tablet (or the powder from in the capsule, I should say). It's not a cure, but seems to work the same way as taking vitamin c when you have a feeling a cold is coming on. You kind of catch the virus before it's full blown and maybe lessen the discomfort.
Hope it's helpful. I'm wondering, too, if your doctor saw the sores as a cardiac concern as mentioned.
Hatzlacha!
 
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UpsWithDown's
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12/21/04 10:31 AM
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I know that when I get sores in my mouth (kanker sores- don't know how to spell) someone told me to take l-lysine...I think it's a type of amino acid...and amino acids are what help with repair(from what i remember learning Bio i high school)...btw- does you pediatrician know about this?

Here's some info I found:
Sci-Fit's L-Lysine is a protein amino acid that is classified as an essential amino acid for humans and therefore must be supplied in the diet. L-Lysine may reduce the herpes simplex virus (HSV) infections and/or reduce their severity in some. Furthermore, some preliminary research indicates that L-Lysine may help promote absorption of Calcium in the small intestine, making it an anti-osteoporosis.1

In a double blind, placebo controlled, multicenter trial of L-Lysine supplementation, the group receiving 1000mg of L-Lysine daily for six months experienced an average of 2.4 fewer HSV infections and their symptoms were significantly reduced.

Hope it helps.


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*Haboteach BaHaShem chessed yesovevenu*
 
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GamZuLetovah
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12/21/04 11:23 AM
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Thanks all for your help and advise!

B"H it has been much better lately, but i will remember this advise if ever needed.


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Happy Soul
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1/19/05 4:44 PM
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My 4-yr. old daughter (with DS) has her hands in her mouth a lot, and HATES having her teeth brushed. She's very sensitive about people touching her mouth and she's not a great eater. It's really difficult for me to look inside her mouth. After having read your message about mouth viruses, I was wondering whether this is what her problem is. How did you know that your baby had this? Do my daughter's "symptoms" sound familiar? (BTW, our pediatric dentist has never indicated that our daugther could have a mouth infection, but maybe he hasn't noticed either?).
 
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GamZuLetovah
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1/19/05 5:50 PM
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At this point I believe that whatever it was I don't think it had anything in particular to do with DS because except for that stretch of time he hasn't had it again B"H.


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bmr
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1/21/05 10:01 AM
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We knew about the sores in our daughter's mouth because they're terribly uncomfortable and painful and she was simply miserable and cranky. True, as a baby she couldn't tell us her mouth hurt so we just would have a suspicion if she was acting sick and cranky and not wanting to eat or drink. But it only took one look in her mouth by the doctor, and by us too once we knew what to look for, to see what was wrong. It just looked like big white sores on her gums.
I can see where your child with Downs might not communicate what's bothering him. Nor might it be as bothersome to him. I know my son with DS definitely has a much higher threshold for pain then most of us (whether he simply doesn't feel and sense the pain in quite the same way or whether it just fits in with his general ability to be accepting of and happy with whatever or whomever comes his way...that's for a different discussion).
Kol tuv
 
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