Login
Questions or Comments!
admin@frumsupport.com

Get FrumSupport News! Join our mailing list.
Email:


Search

Navigation:

 Tehilim List  < Refresh >
TOPIC TITLE: PEMPHIGUS
Created On 6/30/05 9:27 PM
Topic View:

View thread in raw text format


Emunah613
Junior Supporter

Posts: 15
Joined: Jan 2005

6/30/05 9:27 PM
User is offline

Does anyone have or know someone who has Pemphigus (Vulgaris or Foliaceous) that can
share their experience with it? Thanks.
 
Reply
   
Quote
   
Top
   
Bottom
     



zelda zissel
Junior Supporter

Posts: 3
Joined: Jan 2006

1/14/06 8:30 PM
User is offline

I just joined frum support so by now you may have more experience coping with pemphigus. I ws diagnosed in March 2006, so far am not in remission. I take a combination of pednisone, dapsone and cellcept along with some stereoid shots to the blister sites in the mouth. There is a website www.pemphigus.org, it belongs to the pemphigus foundation. Be careful to check for bone density and glaucoma.
 
Reply
   
Quote
   
Top
   
Bottom
     

View thread in raw text format
FORUMS > Allergy & Immunology > Immune Disorders < Refresh >

Navigation:

The information in this site is not intended to replace the advice of a doctor. FrumSupport disclaims any liability for the decisions you, the User, makes based on information on this site. By using this site, reading, viewing, posting or otherwise, you signify your assent to the Terms and Conditions of Use. If you do not agree to all these Terms and Conditions of Use, please do not use this site. FrumSupport may revise and update these Terms and Conditions of Use at anytime. Your continued usage of FrumSupport will mean you accept those changes.

If you think you or someone you know has a medical emergency, call your doctor, Hatzolah or 911 immediately. FrumSupport cannot and does not monitor forums and postings and cannot and will not pro-actively obtain help for users in need as FrumSupport does not have the funds or people power to accomplish such tasks and it will infringe on the anonymity of each user. Therefore, FrumSupport’s liability is limited by this paragraph and as further set forth in the Terms and Conditions of Use.