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TOPIC TITLE: Tetralogy of Fallot
Created On 11/26/06 12:15 PM
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Puah
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Joined: Nov 2006

11/26/06 12:15 PM
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Are there any of you out there who are "survivors" of Tetralogy of Fallot"? How old are you? How is your health? Do you have arrythmia problems, etc?)
Puah
 
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Jewish Mother
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2/16/07 1:24 PM
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My son is four years old and doing great.I am in contact with people much older and post TOF. For more in info you can contact me.
 
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treaty
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3/30/09 9:16 AM
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my daughter is 17 yrs. old and is doing great. Bec. of age and growth spurt, she is having lots of tests done just to make sure. I'm nervous about shiduchim though. I need all support I can get.
 
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froggy4
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4/13/09 9:47 PM
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is tetralogy of fallot the same thing as hypoplastic left heart syndrome?


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froggy4
 
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Jewish Mother
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4/19/09 8:12 PM
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Tetrology of fallot and HLHS are not the same defect.For more info you can contact me.
 
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froggy4
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4/19/09 8:39 PM
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my daughter has hlHS so i know what that is. It would be nice to hear from ppl with this defect who are older. my daughter is 4. Although these days they're more advanced with their surgeries.


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froggy4
 
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FULLOFHOPE
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Joined: May 2009

5/26/09 2:03 PM
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My son has TOF, he is four and b'h doing well. Every year we go to the cardiologist but she doesn't give us guarantees that he will not need more surgery.


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LEAH PANCER
 
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Jewish Mother
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Posts: 5
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6/7/09 1:30 PM
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would love to speak to you my son is 6 and has TOF as well as PA.
 
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FORUMS > Cardiology > Congenital Heart Disease < Refresh >

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