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TOPIC TITLE: My son has Chrons..
Created On 3/2/08 4:18 PM
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MitzvahMom
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3/2/08 4:18 PM
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He was diagnosed last year...

He was on three medications, but B"H we are down to two...Pentas and Azathioprine.

This along with a diet and natural remedies

Probiotic
paraenzymes...etc.. Seems to be helping

But every once and a while his stomach just hurts, and I have to put on a hot water bottle..

I feel so bad for him, because he's afraid to eat anything that makes his stomach hurt. some days at school he eats only fruit, if it's something he cannot eat. Even though I have snacks for him in the nurses office if that happens, he's embarassed to have to leave his friends to get food. End up having to have food in the car for him constantly, and let's face it when u have other kids they want the food too. It's becoming so CRAZY at sometimes, he cries the entire way home if I do not have enough for everyone. AS he feels sad and shares, and then is starving.

B"H everything seems to be helping, no longer having the runs, or uncontrolable pain.. I just wish I knew what else I could do for him, to help him know he's not alone...etc...




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Malka
 
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yaldatova613
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3/2/08 11:41 PM
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how old is he?
 
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MitzvahMom
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3/3/08 10:06 AM
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my son is K"ah 7...

Sadly my family has been through a lot so for a 7 year old, B"H he's finally learning to express himself instead of holding it in.. So his stress level is much lower, that helps I believe


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Malka
 
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yaldatova613
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3/3/08 6:26 PM
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mm - i 'pm'ed u.
 
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BH613
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3/6/08 3:56 PM
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I have a son who is now 13 and was diagnosed with Crohn's at 9. I would be happy to be helpful if ther is anything I could do.
Hatzlochoh Rabboh and Refuah Shelaimah
Miriam
 
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haimishetatty
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4/5/08 5:07 PM
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My doctor prescribed PENTASA for me when I first had Crohns. I would recomend you trying the almond muffin recipe in Elaine Gotschalls Book, Breaking the Vicious Cycle. My wife alternatively flavors it with Strawberry or blueberry or banana. She uses paper or silver foil cupcake cups in the baking molds. Even some of our other children who arent sick like to nosh them.
Perhaps give them to your son as a nosh or as a main food in his lunch bag. Store them in the fridge as their out of fridge shelf life isnt long.
I realize that everybodies metabolism is different. The diet has been successful for some not for others. Personally I stuck to it strictly for over three years and amazed my doctors with my overall improvment.
I would aso suggest you checking to see if he is lactose intolerant. That alone can be stressfull and uncomfortable to a young boy. I know from my own personal expereince as a child.
In general being a father of boys his age I would encourage you to enable him to play outside as much as possible. In addition to take him swimming once a week or bath or shower him as daily or almost daily.
I dont recall where I read this but again from personal experience
the exercise plus the hydrotherapy of the water does affect the digestive system for the better.
Socially perhaps have him invite friends over to play. It is maybe more comfortabe having his bathroom at home to go to rather than a strangers. If you live in the NY metro area go consult with Yaakov Friedman the nutritionist at Wealth of health on Ave U. He helped me alot. I took all the vitamins and nutritional supplements he recomended. It was alot to take every day not to mention very costly. But over the course of the years it was worth it.

Hatzlacha!
 
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MitzvahMom
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1/8/09 1:50 AM
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Life changes so quickly

My family in LA offered to help me with the kids while I focus on my Nursing School.

Any suggestions?


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Malka
 
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