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TOPIC TITLE: REFLUX
Created On 1/12/05 3:41 PM
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SEEKING HELP
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1/12/05 3:41 PM
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DOES ANYBODY KNOW IF REFLUX HAS ANYTHING TO DO WITH DOWN SYNDROME……? AND PLEASE ANY SOLUTIONS??? DOCTORS????? REMEDIES???
 
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downsyndrome
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1/12/05 7:54 PM
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Reflux has got something to do with being human, and yes, DS kids certainly have reflux. I just wish my pediatrician would have thought of it when my son with DS was an infant. He is now 15 years old and doctors are a lot more aware of treating colic babies with reflux meds. My son was colicy for 8 months and people used to tell me, "Be grateful that he cries; most DS babies are so good, they are too good. His screaming is a good sign." I didn't think so at 2:00 a.m.
You should certainly look into the reflux possibility...
Sarah S.
 
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RachemNu
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1/13/05 1:55 PM
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Dr. Steven Tannenbaum 212-305-7550 at Columbia Presbytarian Hospital
 
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helping hand
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1/13/05 4:10 PM
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Dr. Steven Tannenbaum is a urologist and not a gastroenterologist
 
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bmr
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1/17/05 1:57 PM
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Dr. Nancy Pittman at Mt. Sinai 212-241-5415 is one of the most all around wonderful doctors of the many we've come to know. If my son with Down syndrome needed a GI doctor, that's where I'd go with him, too.
Otherwise I know of no specific connection between DS and GERD other than the human factor as Surie S. mentions, and maybe the fact that our DS kids seem more susceptible to a myriad of things..
Hatzlacha
 
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SEEKING HELP
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1/17/05 3:37 PM
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WE TRIED DR. PITTMAN A FEW YEARS AGO, WE HAD NO SUCCESS, BUT THANK YOU ANYWAY
 
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bmr
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1/20/05 3:30 PM
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How about trying a specialist at a place such as North Shore University Hospital which sees a lot of kids with Downs. (The Association for Children with DS in Bellmore LI directs their kids there). We spent many years at NSUH (cardiology, specifically) and they seem to have seen it all when it comes to DS. Or perhaps there's another hospital out there that has a lot of experience with DS and might offer you some clues as to why your child isn't responding well to your attempts at treatment...
Hatzlacha
 
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ag
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1/22/05 5:13 PM
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Dr. Babu Bangaru from NYU is supposed to be a top gastroenterologist. Sorry, I don't have a number but I can get it if you're interested.
 
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momofds
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2/2/05 7:05 PM
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As a mom of a 3 year old with DS - I have noticed that reflux is much more common in children with DS than doctors will admit. As a young baby my son was very defensive about food, and the explaination was, maybe he has reflux. Because he didn't throw up regularly the doctor didn't think it was so bad. Well, he started getting pnemonia regularly, and my doctor said he's probably just very suseptible to viruses... To make a long story short - I decided to take my son to a Gastroenterologist in Columbia - Babies Hospital (Dr. Phillip Kazlow - 212-305-5903) we discovered that my son was ASPIRATING HIS REFLUX!!!
He was silently aspirating his reflux which was turning into pnemonia - at least once a month.
B"H he's doing better today - but reflux can be a killer.
We also see Dr. Levy (Pediatric Gastroenterologist) in Columbia 212-305-5693
Hatzlacha.


Edited: 2/2/05 at 7:06 PM by momofds
 
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downsyndrome
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2/13/05 12:05 AM
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Hi! I haven't visited this site for a while - I gave birth to a baby boy 4 weeks ago B'H. It's nice to be back though.
I see that 'momofds' just recommended the doctor that I was going to - Dr. Joseph Levy at Columbia Babies Hospital. He is absolutely terrific, a darling personality, very qualified at what he is doing, and very difficult to get to.
After our son with DS got over his infancy colic he used to develop what appeared to be terrible stomach viruses during the night during his toddler years. When I say terrible viruses, I mean 'terrible'. My husband and I would get up in the middle of the night, don latex gloves, and clean and clean and clean. Moishey's entire room used to be covered in vomit. It was unreal that one little child could produce so much. I also used to wash laundry all during the night because all his linens used to be exhausted in a matter of a few short hours. After several hours of these repeat episodes, he would finally fall asleep and the next morning he'd be fine, except for broken blood vessels all around his eyes from straining to throw up. I always took him to the local pediatrician to check out, and of course, the diagnosis was 'stomach virus'.
Years later, when he was already being treated for reflux, Moishey developed bad stomach and chest discomfort when eating. He would clutch at his middle and complain of pain. He would also gasp for breath, almost like somebody who was having a heart attack ch'v. We took him to a highly recommended GI specialist who 'played' around with Moishey and a host of different medications for weeks. We were getting nowhere. I switched over to Dr. Joseph Levy at Babies Hospital. We went through Moishey's medical history. When I described his middle-of-the-night toddler 'viruses', Dr. Levy said that those were no viruses. Moishey was having 'stomach shutdown' from his reflux and everything was coming out. The proof of this was that he would never have diarrheas when he had those 'viruses' and if they would have really been that, then diarrhea would have been present too. To make a long story shorter, Dr. Levy tried one more reflux RX, gave it two weeks time and then moved toward 'tachlis' when that RX didn't take either. He scheduled an endoscopy in the O.R. and sure enough he found that Moishey had an accumulation of bile and an inflammation in his stomach. Knowing that, he put Moishey on some different meds, and within a few weeks he was HEALED, totally, of everything having to do with reflux! Boruch Hashem, he is now 15 years old and he eats like a horse KA"H.
Dr. Levy is also our toddler daughter's GI specialist since she was born with a tracheo-esophageal fistula/atresia. He has been wonderful!
Now with the new baby too, we were experiencing tremendous problems with the baby formula. He wasn't agreeing to four different formulas that I tried during his first three weeks of life! He was having severe diarrhea (12 - 15 bowel movements per day!) with traces of blood in it. As soon as I called Dr. Levy and told him what was going on, he diagnosed the baby as having a protein intolerance and put him on a hypo-allergenic formula. Boruch Hashem, the results are wonderful.
So, please excuse my rambling, but just wanted to share with you all what a wonderful doctor, diagnostician, and compassionate person Dr. Levy is.
 
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happyone
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2/17/05 11:18 PM
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Doctor Levy recently wrote a book titled "My Tummy Hurts." It a really good resource for basic explanations on all GI related ailments. check it out on www.amazon.com.
http://www.amazon.com/exec/obidos/ASIN/0743236068/dealtime-da/ref%3Dnosim/002-1798766-9698400
You'll find lots of info on reflux and more....
good luck.
 
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hb
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2/27/05 12:58 AM
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Mazel Tov DownSyndrome to your new baby!!!! Lots of nachas!


Edited: 2/27/05 at 12:59 AM by hb
 
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downsyndrome
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3/1/05 8:06 PM
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Thank you, hb. IY"H by you 'oif simchas'.
 
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chanybraun
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1/8/07 9:59 PM
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what can you do to a 6 week ols with reflux.
 
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hb
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1/17/07 9:06 AM
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Try feeding him/her in an upright position.
If you are bottle feeding, you might want to try changing formula as it may be an intolerance to the formula.
Feed smaller amounts per feedings more often.
Keep the head of his/her crib elevated.
Thicken feeds with Thick It or gel as recommended by your doctor.
You might considor reflux medication if your child is really uncomfortable, vomiting, FTT.
Good luck.
 
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Edith
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1/17/07 10:20 AM
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My pediatrician prescribed Zantac (in liquid form) for my baby, which he took for a while and this helped alot. b'H we grew out of it!
 
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coolme56
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3/6/10 8:25 PM
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How long was he on zantac? and how long after you started the treatment did you see results?
 
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chanieF
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3/6/10 10:03 PM
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results are usually pretty soon after. but note that zantac dosage needs to be adjusted as baby gains weight, and also keep in mind that some may get lots of abdominal pain from zantac. so if this is the case and/or it doesn't help, then you can also try prevacid [though potentially the same side effects, but everybody responds differently to different meds...]
 
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FORUMS > Gastroenterology > GERD Gastroesophageal Reflux Disease < Refresh >

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