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TOPIC TITLE: research and hope
Created On 9/27/05 12:26 PM
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chanieF
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Posts: 360
Joined: Feb 2005

9/27/05 12:26 PM
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for info on the gene and genetic nutritioneering (in which genetic expression is modified by nutrients) to prevent progression of the disease, read through info on Drs. Berish Rubin and Sylvia Anderson of Fordham University's Laboratory for Familial Dysautonomia Research.

rather amazing and encouraging
 
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greatmom
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11/14/05 5:05 PM
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i have a daughter who has fd if there is anyone who wishs to talk im here she is 21 so i have alot of experice thank you


-------------------------
fran perelstein
 
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greatmom
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11/14/05 5:07 PM
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also i am not hiding her any longer there is a test so no more fd children have to be born with fd i also have a married daughter so any one who wishes to talk feel free thanks


-------------------------
fran perelstein
 
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YOUNGLDY
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6/19/06 7:49 PM
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hi, just wanted to add a story. dor yeshurim notified me not to do a shiduch, due to the fact that both are carriers. i guess you have to be thankful.
 
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hashemknows
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12/3/06 2:38 PM
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what type of disease is it?


-------------------------
orahc
 
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CAP
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3/8/07 3:01 PM
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greatmom - please check your private messages.. i sent you one!
thanks
 
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??? ??? ????
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5/27/08 5:52 PM
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Quote

Originally posted by: greatmom
i have a daughter who has fd if there is anyone who wishs to talk im here she is 21 so i have alot of experice thank you


how can i contact you?


-------------------------
???? ??? ????? ?????...
 
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HJ613
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9/2/09 5:04 PM
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hi great mum
i would really like to get in contact with u, please let me know how.


thanks

if there is any other FD mum that would like to be in contact with me, please msg me, i would really appreciate it. I have a son with FD who is 12.

kol tuv
 
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personn
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3/14/10 4:06 AM
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hi ladies i knw of good help imda1best@gmail.com


-------------------------
heyyyy
 
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FORUMS > Familial Dysautonomia > Familial Dysautonomia < Refresh >

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