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TOPIC TITLE: Trisomy 18 loss
Created On 3/23/06 3:07 PM
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frummarm
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Posts: 1
Joined: Mar 2006

3/23/06 3:07 PM
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Not sure if this is the right forum, but there wasn't a forum for Edwards' Syndrome in the MR/DD forum, nor in the OB forum.

Should anyone know of a frum person dealing with a T18 diagnosis, lo aleinu, I've been through it. My main support was www.trisomy18support.com, but nobody was frum while I was pregnant and immediately after my loss. I can't stay active on the boards there due to time restraints, but I do volunteer with some behind the scenes help. I highly recommend it in cases of this terrible diagnosis, and would also be willing to be a shoulder to anyone frum coping with it.


-------------------------
May time soften the pain,until all that remains,
is the beauty of the memories...
and the love,
always the love...
 
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Bayla
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Posts: 2
Joined: Oct 2006

11/3/06 5:35 AM
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I'm playing shadchan here.

There is someoneone on another thread who has been diagnosed as carrying a baby with Trisomy 18. I'm sure she could do with some support & I've directed her to your thread, maybe she's alredy contacted you, but if not I'm directing you to her thread (scroll down - her post is currently second from the bottom....)

http://www.frumsupport.com/Forums/messageview.cfm?catid=192&threadid=49

I have one friend whose baby with T18 lived for well over two years, and another aquaintance whose T18 baby was niftar soon after birth....one of the hardest things for both of them was not knowing anyone else frum with the exact same diagnosis.

Bayla


Edited: 11/3/06 at 5:37 AM by Bayla
 
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downsyndrome
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Posts: 71
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7/22/07 11:15 PM
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Wow! I haven't been on this site in months, but I just logged on and now came upon this thread. There is a young woman in our community who gave birth to a baby with Trisomy 18 around Purim time. The baby is in the hospital since birth. The family is shattered. Should I put them in touch with you, frummarm?
 
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personn
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Posts: 21
Joined: Mar 2010

3/14/10 4:38 AM
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message me imda1best@gmail.com


-------------------------
heyyyy
 
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